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The value of informal care: a further investigation of the feasibility of contingent valuation in informal caregivers

Including informal care in economic evaluations is increasingly advocated but problematic. We investigated three well-known concerns regarding contingent valuation (CV): (1) the item non-response of CV values, (2) the sensitivity of CV values to the individual circumstances of caring, and (3) the choice of valuation method by comparing willingness-to-pay (WTP) and willingness-to-accept (WTA) values for a hypothetical marginal change in hours of informal care currently provided.

Thu, 07/20/2017 - 15:09

Culture shift: carer empowerment and cooperative inquiry

Government policy has directed local services to address the needs of carers as a way of maintaining care in the community. This study was initiated to enable carers to develop an information pack based upon their identified needs. Cooperative inquiry was the method used to ensure full participation of the carers. Group meetings were already in existence through a charity organization who provides a carers support network. The first author participated in a number of carers group meetings.

Thu, 07/20/2017 - 15:08

Working with older family carers and relatives with learning disabilities

The new white paper in England is an opportunity for services to stop and think about their relationship with families. This article looks specifically at the situation of older family carers and why services often fail to 'make sense' to them. It shows that these families often do not get the support they need, leaving them in great anxiety about the future. Examples are given of practical initiatives that have worked successfully with older families.

Thu, 07/20/2017 - 15:08

Linkages among empathic behaviors, physical symptoms, and psychological distress in patients with ovarian cancer: a pilot study

Purpose/Objectives: To explore linkages among empathic responding by informal caregivers with the physical symptom experiences and psychological distress of patients with ovarian cancer. Design: Preliminary, descriptive, correlational, and cross-sectional. Setting: Psychosocial oncology support group in Canada. Sample: Convenience sample of 13 women with stage I-IV ovarian cancer with the majority diagnosed with disease recurrence. Methods: Data were collected on a single telephone call using the Hospital A

Thu, 07/20/2017 - 15:08

Examining the support needs of ageing family carers in developing future plans for a relative with an intellectual disability

Background: Planning for the future care of adults with an intellectual disability after the main family carer ceases their care, continues to be a sensitive and difficult time posing challenges for service providers internationally. Limited research has been undertaken on this topic because until recently, people with intellectual disability usually pre-deceased their parents. This study examined ageing carers’ preferences for future care and the support systems required to make such future plans. 

Thu, 07/20/2017 - 15:08

The diversity of staff supporting family carers in England: findings from an analysis of a national data set

Little is known about those employed to support family carers of disabled people or those with longterm care needs. The term ‘carer’ is used in England to refer to family members and others who provide unpaid regular and substantial support to adults with disabilities, including older people and others unable to live independently. Among the wider social care workforce some staff are employed to provide support for these carers, but little is known about the composition and characteristics of this group of staff.

Thu, 07/20/2017 - 15:08

Money for old hope

A blow to spending on social services threatens a deterioration in quality of life for carers and users, but a new grant could protect this vulnerable group and ease some of the pressures on the NHS. [Journal abstract]

Thu, 07/20/2017 - 15:08

An integrated approach for individualised support : carers’ views

Purpose – The purpose of this paper was to capture carers’ views of a service in Bristol funded jointly by the Local Authority and the NHS Clinical Commissioning Group, which offers support to carers in the form of a one-off payment which they can use for anything they choose. 

Thu, 07/20/2017 - 15:08

Learning disabilities and valuing informal carers

Informal carers are not always recognized for the role they play in supporting those with a disability, including learning disabilities. However, their inclusion in the way in which health services are provided can be crucial in ensuring that the best possible standards of care are offered. This article looks at the definition of formal and informal care and discusses how support workers and health professionals more broadly can improve the experiences of informal carers and those with learning disabilities.

Thu, 07/20/2017 - 15:08

Formal support of stroke survivors and their informal carers in the community: a cohort study

This cohort study, aims to explore formal care provision to stroke survivors and their informal carers in the community in the UK. An initial cohort of 105 cohabitant carers of first-time stroke patients was recruited while the stroke patient was in hospital. Structured face-to-face interviews were carried out with carers prior to discharge of the stroke patient home, at 6 weeks after discharge, and 15 months after stroke.

Thu, 07/20/2017 - 15:08