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Respite care for caregivers and people with severe mental illness: literature review

Aim.  The aim of this study was to review research literature over the past 10 years on respite care for people affected by severe mental illness; and identify key implications for nursing practice in provision of respite care for family caregivers of people with severe mental illness.

Thu, 07/20/2017 - 15:09

Supported housing for people with Down's syndrome

There has been limited research on the attitudes of family carers and the part they play in helping people with a learning disability choose accommodation. A postal questionnaire was sent to family carers of people with Down's Syndrome, to identify their attitudes to supported living, their experience of the application process, and the support they provided to residents. It was found that main family carers of people with Down's Syndrome in supported living were generally satisfied with the housing and support provided, particularly with respect to activities of daily living.

Thu, 07/20/2017 - 15:09

A place for support: new policies for informal carers in long-term programmes

Reviews policy trends for informal carers which have been implemented in various countries between 1996 - 1998. The article focuses on respite care and direct payments for carers of older ill and disabled adults.

Thu, 07/20/2017 - 15:09

One of our own kind: carer liaison at work

Joanne Schofield and Jack Buckley Mellor explain the value of having a carer available to offer support to other carers with relatives on a continuing care ward

Thu, 07/20/2017 - 15:09

The experience of caring for a family member with Alzheimer's disease

The purpose of this phenomenological study was to describe the experience of caring for a family member with Alzheimer’s disease or related disorder (ADRD) living at home among a diverse sample of 103 family caregivers. The study involved secondary analysis of in-depth transcribed interview data using van Kaam’s rigorous four phase, 12-step psychophenomenological method. A total of 2,115 descriptive expressions were categorized into 38 preliminary structural elements. Eight essential structural elements emerged from an analysis of the preliminary structural elements.

Thu, 07/20/2017 - 15:09

Evidence in policy and practice: what kinds of research designs?

Summary: Over-generalization of the ‘effectiveness hierarchy’, and echoes of past paradigm wars about methodology, persist in generating conflicting judgements about the value of different research designs for evidence-based practice. A range of ways in which the worth of research is actually judged, and might be judged, are elaborated.

Thu, 07/20/2017 - 15:09

Pre-menstrual syndrome in women with Down Syndrome

Background  Prevalence of pre-menstrual syndrome (PMS) may be higher in women with Down syndrome due to syndrome specific characteristics in biochemistry, psychopathology and lifestyle. Recognition of PMS may be difficult for women with intellectual disabilities and their carers.

Method  A daily diary, used to diagnose PMS with typical women, was adapted. Following its validation, the diary was completed by 33 women with Down syndrome, then adapted, and completed by a further 32 women with Down syndrome/carers.

Thu, 07/20/2017 - 15:09

Support for Alzheimer's caregivers

Objective: Information on the shortened, 20-item version of the Perceived Social Support Scale (S-PSSS) is scarce. The purpose of this study is to evaluate the psychometric properties of the S-PSSS Family (SSfa) and Friends (SSfr) subscales. Method: Because of their common coping method of social support, a cross-sectional sample of Alzheimer’s caregivers was relevant for this evaluation.

Thu, 07/20/2017 - 15:09

Burnout of caregivers: a comparison between partners of psychiatric patients and nurses

Care of a person with mental illness involves multiple burdens, possibly leading to burnout. This study compares partners of persons with schizophrenia and depression with nursing staff based on dimensions of burnout. Nursing staff and partners of patients with schizophrenia or depression were consecutively recruited from psychiatric hospitals and interviewed with the Maslach Burnout Inventory. No significant differences were found in the three dimensions of burnout (emotional exhaustion, depersonalization, and personal accomplishment) for the two groups of caregivers.

Thu, 07/20/2017 - 15:09

Global women's health: a spotlight on caregiving

Caregiving is a women's health issue globally, as many more women than men are informal caregivers. Caregiving related to gender role socialization, burden, and economic and health consequences has been discussed in the literature. Together this body of work demonstrates some positive but mainly negative consequences to the health and economic circumstances of women.

Thu, 07/20/2017 - 15:09