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Caring for mum and dad: lesbian women negotiating family and navigating care

This article reports on findings from a qualitative study that explored the experiences of twenty-one gay men and lesbian women who care, or cared, for a person with dementia in England. The aim of the study was to explore how a person's gay or lesbian sexuality might impact upon their experience of providing care in this context. Analysis of the data identified a number of consistent themes—carers' experiences of the early signs and symptoms of dementia, of receiving the diagnosis, becoming a carer and their hopes and fears for the future in light of their care-giving experiences.

Thu, 07/20/2017 - 15:09

End-of-Life Care and Preferences for Place of Death among the Oldest Old: Results of a Population-Based Survey Using VOICES-Short Form

Background: End-of-life care (EOLC) is a key component in care of older people. However, evidence suggests that the oldest old (>85 years) are less likely to access specialist EOLC.

Objective: The study's objective was to explore experiences of EOLC among the oldest old and determine their reported preference for place of death.

Design: The study involved a self-completion postbereavement survey.

Thu, 07/20/2017 - 15:09

Identifying needs, burden, and distress of carers of people with Frontotemporal dementia compared to Alzheimer's disease

The literature on carers of people with Frontotemporal dementia (FTD) is negligible compared to the vast literature on carers of people with Alzheimer’s disease (AD), and little research has compared the two groups. Research has mainly focused on identifying the behavioural characteristics of people with FTD or AD. The impact of these behaviours on the psychological well-being of carers of people with FTD is relatively unexplored.

Thu, 07/20/2017 - 15:09

Health-related quality of life among informal caregivers assisting people with multiple sclerosis

Objective: To identify factors affecting the health-related quality of life (HRQOL) of informal caregivers assisting people with (multiple sclerosis) MS who have greater functional impairment.

Methods: Data were collected in a national survey of 530 people who provided informal care to people with MS. Multiple linear regression models analyzed these data.

Thu, 07/20/2017 - 15:09

Services to support carers of people with mental health problems : overview report for the National Co-ordinating Centre for NHS Service Delivery and Organisation R & D (NCCSDO)

The aims of the study were to summarise available research evidence, to identify key gaps in existing knowledge and to identify priorities for further research in the area of services to support carers. The literature review examined and summarised evidence from published and unpublished literature (both UK and international) between 1985 and 2001 about effective and cost-effective services to support carers.

Thu, 07/20/2017 - 15:09

Living with the dying: using the wisdom of mindfulness to support caregivers of older adults with dementia

High levels of stress among family and professional caregivers of older adults with dementia are associated with physical and mental health problems, and decreased quality of care. Existing stress reduction interventions are based on the western medical model of care. They typically focus on providing caregivers with support, psychoeducation or behaviour management skills, and these interventions have typically had modest outcomes. An especially promising intervention for dementia caregivers, which is based on the eastern holistic model of care, is mindfulness training.

Thu, 07/20/2017 - 15:09

Predictors of quality of life among spouses of stroke patients during the first year after the stroke event

BACKGROUND: Stroke, a disease with severe consequences for patients and their families, often lead to psychosocial stress, and a decline in the quality of life (QoL) among carers. Predicting the QoL is essential in the development of effective nursing support interventions.

AIM: The aim of the present study was to identify predicting factors for the general QoL among spouses of stroke patients, and to determine whether these predictors change during the first year after the patient's stroke event.

Thu, 07/20/2017 - 15:09

Impact of caregiving: listening to the voice of informal caregivers

Long-term care of the elderly and the disabled rests on a vast network of informal caregivers. This qualitative study examined the effects of caregiving on the health and wellbeing of a small, non-representative sample of urban women caregivers. These 11 informants participated in two interviews. Health was conceptualized in a holistic manner, consistent with the view of the World Health Organization and Health Canada. The caregiving experience, as described in this study, was life changing and consuming.

Thu, 07/20/2017 - 15:09

Hidden carers

Informal carers provide the majority of care for older people living in the community. The provision of care can be very stressful and is said to have an adverse effect on caregivers health. policy has recognised the need to support carers and a key objective has been to improve service provision for them. research has shown that service intervention can prevent the breakdown of care and admission to long term care. However, relatively few carers and older people use formal services. While the low uptake of services is documented it is not fully understood.

Thu, 07/20/2017 - 15:09

Help from spouse and from children among older people with functional limitations : comparison of England and Finland

Future increases in need of old-age care warrant research on receipt of informal care among older people in different policy and cultural contexts. Separating informal care into help provided by spouse and by children may shed more light on dynamics of informal help, important in alleviating the demands on the formal sector. Using nationally representative data from England and Finland, we performed logistic regression analyses to study receipt of help from spouse and children among community-dwelling persons aged 70+ years with functional limitations.

Thu, 07/20/2017 - 15:09