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Barriers to genuine consumer and carer participation from the perspectives of Australian systemic mental health advocates

Background: Consumer and carer participation in mental health service development and evaluation has widespread nominal support. However, genuine and consistent participation remains elusive due to systemic barriers.

Aims: This paper explores barriers to reform for mental health services from the perspectives of consumers and carers actively engaged in advocating for improvements in the mental health system.

Thu, 07/20/2017 - 15:22

Including families and carers : an evaluation of the family liaison service on inpatient psychiatric wards in Somerset, UK

Purpose– National mental health policies in the UK have a common theme of seeking to develop working partnerships between people who use mental health services, their families and carers and professionals. In Somerset, following a staff training programme, a Family Liaison Service has been developed whereby systemically trained staff work alongside inpatient staff to hold family meetings as part of the assessment and admission process on all wards for working age adults and older people. This article aims to focus on this initiative.

Thu, 07/20/2017 - 15:22

What predicts whether caregivers of people with dementia find meaning in their role?

Background: Informal dementia caregiving has traditionally been perceived as an extremely stressful process; however, more recent research has started to focus on the positive aspects of providing care. Studies indicate that caregivers who derive something positive out of caregiving have better well-being. However, there has been little exploration of the factors linked to caregivers identifying positive aspects of providing care. The aim of the current study was to explore the predictors of finding meaning in caregiving.

Thu, 07/20/2017 - 15:22

Carer participation: training for people with intellectual disabilities in a Chinese society

People with intellectual disabilities require training to improve independence, and carers are important partners in the process. Studies show that carers are able to motivate family members with intellectual disabilities to participate in training. In addition, family members may serve as cotrainers. To increase carers' participation, it is necessary to empower them with training techniques and develop strategies to relieve their stress.

Thu, 07/20/2017 - 15:22

Association between informal caregiving and cellular aging in the Survey of the Health of Wisconsin: The role of caregiving characteristics, stress, and strain

The pathophysiological consequences of caregiving have not been fully elucidated. We evaluated how caregiving, stress, and caregiver strain were associated with shorter relative telomere length (RTL), a marker of cellular aging. Caregivers (n = 240) and some noncaregivers (n = 98) in the 2008–2010 Survey of the Health of Wisconsin, comprising a representative sample of Wisconsin adults aged 21–74 years, reported their sociodemographic, health, and psychological characteristics. RTL was assayed from blood or saliva samples.

Thu, 07/20/2017 - 15:22

The support of parents in old age by those born during 1945-1954 : a European perspective

In 2004 in Europe, more than two-thirds of those born during 1945–54 had a parent or parent-in-law alive, and the rates of co-residence with their ascendants ranged from less than four per cent in Sweden, Denmark and The Netherlands, to between 17 and 24 per cent in Italy, Spain and Greece. The proportions that had provided practical help to their parents during the previous 12 months had a north-south gradient, from approximately one-in-three in the northern countries to 15 per cent or less in the southern countries.

Thu, 07/20/2017 - 15:22

Unmet needs of outpatients with late-life depression; a comparison of patient, staff and carer perceptions

Background: There is evidence that late life depression is associated with high levels of unmet needs. Only a minority of the depressed patients appears to be adequately treated.

Thu, 07/20/2017 - 15:22

A systematic review of networked technologies supporting carers of people with dementia

We conducted a systematic review of the effectiveness of networked ICT interventions in supporting carers of people with dementia. Five bibliographic databases were searched and a total of 1,456 abstracts were identified as potentially relevant. From these we identified 15 papers describing five interventions: ComputerLink, AlzOnline, Caring for Others and two studies from the REACH project (TLC and CTIS). The interventions reviewed were multifaceted with elements of networked peer support.

Thu, 07/20/2017 - 15:22

The relationship between brain and behaviour in dementia: you're the expert

This DVD has been developed for those caring for people with dementia. It explains how symptoms are caused and how they affect the behaviour patterns of people with dementia. Expert advice from a consultant psychiatrist and a clinical psychologist is included. Carers also share their experience of learning what it is like to live with a partner with dementia.

Thu, 07/20/2017 - 15:22

Partnerships between older people and their carers in the management of medication

Background.  Responsibility for medication can be an integral part of the informal caring role. Aims and objectives.  To explore partnerships between older people and their carers in the management of medication and consider the implications for health professionals. Methods.  Older people and their carers were identified through community pharmacies in four randomly selected areas of England. Data regarding their activities, responsibilities and experiences of managing medication were collected in semi-structured interviews conducted in respondents' own homes.

Thu, 07/20/2017 - 15:22

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