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Paradoxes in the Care of Older People in the Community: Walking a Tightrope

The expansion of the older population suggests that there will be significant numbers in need of care and support in their own home environment. Yet, little is known about the kind of situations professionals are faced with and how they intervene in the living environment of older people. Qualitative data were collected over a period of 1.5 years from a multi-disciplinary community-based geriatric team in the Netherlands, and participant observations carried out. Forty-two cases discussed within the team meetings were analysed.

Thu, 07/20/2017 - 15:16

A grounded theory longitudinal study of carers’ experiences of caring for people with dementia

Introduction: Increasingly the provision of care for older people with dementia has shifted from institutions to the community. This has resulted in an increase in burden and a reduction in autonomy for those who care for these individuals.

Aims: This study sought to identify, describe and explore the changes in the carers’ experiences of looking after a relative living with dementia, and the effects of caring on the carers’ autonomy and health over time.

Thu, 07/20/2017 - 15:16

Knowledge generation about care-giving in the UK: a critical review of research paradigms

While discourse about care and caring is well developed in the UK, the nature of knowledge generation about care and the research paradigms that underpin it have been subjected to limited critical reflection and analysis. An overarching synthesis of evidence – intended to promote debate and facilitate new understandings – identifies two largely separate bodies of carer-related research.

Thu, 07/20/2017 - 15:16

The needs of informal carers: a proposed assessment tool for use by public health nurses

AIM: To develop an assessment tool for the collection of information on carers' needs and to pilot test same. BACKGROUND: No formal assessment of the needs of carers is undertaken by Public Health Nurses (PHNs) in the West of Ireland. METHOD: An assessment tool which took the form of a questionnaire was designed based on an earlier needs analysis, a literature review and qualitative data obtained with carers at two focus groups. Sixty carers were involved in the pilot study of the tool.

Thu, 07/20/2017 - 15:16

Partners in care: being equally different: lesbian and gay carers

The images of other people we see on a daily basis in the media invite us all to compare ourselves with, identify with, or aspire to be like whoever is shown. Mostly this activity is of little significance and hardly touches our lives, but the further we know ourselves to be different from the norm then the more challenging those differences become to us.

Thu, 07/20/2017 - 15:16

A cognitive behavioural approach for carers of significant others with depression: a pilot study

Depression is a common and chronic illness affecting nearly one in five people in their lifetime. The main responsibility for people suffering from depression falls to their carers. Research indicates that carers find the burden of caring for a family member enormous and often feel isolated with this burden (Highet et al, 2004). This paper presents an evaluation of a six‐week course held in Leeds, based on the principles of cognitive behavioural therapy and specifically aimed for carers.

Thu, 07/20/2017 - 15:16

Employment support for carers

It is estimated that around 6 million adults in Britain are providing unpaid care to a sick, disabled or elderly person. The challenges of combining paid work and informal care affect the type of work that can be done, the hours of work, and the likelihood of gaining or remaining in employment. The main aims of this research were to examine what employment supports are needed for carers currently in work or those who are currently caring or have recently ended a spell of caring and want to return to paid employment.

Thu, 07/20/2017 - 15:16

The 24-7-52 job: family caregiving for young adults with serious and persistent mental illness

Few of the studies focusing on family caregiving have dealt with families caring for a young adult member with a serious and persistent mental illness. This qualitative study expands our understanding of the caregiving processes in these families. The narrative responses of 76 family caregivers from National Alliance for the Mentally Ill chapters across the United States were analysed using content analysis. Five caregiving processes were identified including monitoring, managing the illness, maintaining the home, supporting/encouraging, and socialising.

Thu, 07/20/2017 - 15:16

Consumer voices steer the course of research

Describes how the Lancashire Dementia Research Group (LADRIG) has given people with dementia and their carers an active role in the development of research projects.

Thu, 07/20/2017 - 15:16

Building on carers' stories to enrich research: lessons from a recent study

This paper provides an account of how family carers were involved in a longitudinal research study that aimed to investigate the needs of ‘new’ family carers of stroke survivors. An account of how the researcher involved carers is provided, followed by one carer's description of the benefits and negative consequences of being involved in the study. Suggestions are made about how to develop good practice with regard to involving people in research. The conclusions highlight that, although rewarding, being involved in research is not without its challenges.

Thu, 07/20/2017 - 15:16

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