carers

Our objective was to develop a validated questionnaire that can measure the extent to which dimensions of caring affect the health of carers of patients with motor neuron disease. An initial 190-item questionnaire was developed from in-depth interviews, focus groups and two pilot studies with carers. Factor analysis was applied to the data obtained from a large survey in the UK that identified the underlying dimensions of caring. The newly formed scales were tested for reliability using Cronbach's α, and for construct validity.

To identify and evaluate the reliability and quality of educational materials provided to individuals with schizophrenia and their carers. Materials used by mental health professionals working in community and in-patient settings were collated. Two independent raters used the ‘Discern’ questionnaire to assess the publications.

Research to identify and assess informal carers of people with a mental illness cared for by the Gloucester Assertive Community Treatment Team and to examine their needs. Carers were assessed using a standardised care programme approach and the help they provided, the effect on their lives and the problems encountered were examined. 

This report presents findings from the carers module of the General Household Survey GHS 2000/01. The GHS is a continuous survey based on a sample of the general public resident in private households in Great Britain.

By looking at carers’ experiences, this report takes this case forward by exploring in more detail the evidence and opportunities afforded by telecare and telehealth technologies and the barriers to greater take-up.

Purpose: The purpose of this paper is to explore the attitude and understanding of research among people with Huntington's disease (HD) and their carers, as well as their experiences of research participation. Design/methodology/approach: Semi-structured interviews were conducted with 12 participants with HD (ranging from pre-symptomatic to moderately severe HD) and ten carers.

Describes the relocation of dementia care from the institution to the community, the development of person-centred care and its emerging critique leading to the development of a more systemic approach taking into account the sufferer and family and paid-for carers. Discusses developing an inclusive model and dementia care and society.

The personal circumstances of dementia caregiving are sometimes experienced as so severely demanding as to be overwhelming. While sustenance within, and recovery from these experiences are increasingly addressed in helpful ways from psychological, emotional, and practical life planning frames of reference, we are still learning how to speak with one another about the spiritual dimensions of this peculiar journey. From a spiritual perspective, the caregiver initially, and frequently perpetually, finds her/himself in a state of spiritual exhaustion.

This study explored the needs, aspirations and expectations of older people and family carers from a range of ethnic communities in Bradford, regarding both formal paid care provision and help from family, friends and neighbours. The focus was on the accessibility, acceptability, appropriateness and responsiveness of services. The study found cross-cultural similarities as well as cultural specificities in experiences and expectations.