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Factors influencing the use and provision of respite care services for older families of people with a severe mental illness

Family carers of people with a severe mental illness play a vital, yet often unrecognized and undervalued role in Australian society. Respite care services can assist these family carers in their role; however, little is known about their access to these services. The paper addresses this knowledge gap. An exploratory field study was conducted throughout the eastern suburbs of Sydney, Australia, to identify and examine the factors influencing the use and provision of respite services for older carers of people with a mental illness.

Thu, 07/20/2017 - 15:17

Why do families relinquish care? An investigation of the factors that lead to relinquishment into out-of-home respite care

BACKGROUND: Families/carers relinquishing the care of family members with a disability into the care of out-of-home respite facilities is an under-researched area in the disability field.

Thu, 07/20/2017 - 15:17

Information pathways into dementia care services: family carers have their say

This research described family carers' experiences in accessing dementia information and services in Southern Tasmania, Australia. Focus groups were conducted around three topics: (i) information available to family carers prior to a formal diagnosis of dementia, (ii) sources of information following diagnosis, and (iii) means of transfer of information.

Thu, 07/20/2017 - 15:16

The nature of youth care tasks in families experiencing chronic illness/disability: Development of the Youth Activities of Caregiving Scale (YACS)

The purpose of this study was to develop an empirically derived multi-item scale of care tasks performed by young people in the context of family illness/disability: the Youth Activities of Caregiving Scale (YACS). A total of 135 youngsters aged 10–24 years with an ill/disabled family member completed questionnaires. Factor analyses performed on the YACS yielded four factors, instrumental care, social/emotional care, personal/intimate care and domestic/household care, accounting for 57.78% of the variance. The internal reliabilities of all factors ranged from 0.74 to 0.92.

Thu, 07/20/2017 - 15:16

Invisible families: the strengths and needs of black families in which young people have caring responsibilities

This is the report of a collaborative study between the Manchester Metropolitan University and the Bibini Centre for Young People to investigate the experiences, needs and access to services of black ‘young carers’ and their families. It is important to highlight that this study was situated within the social and political context of inequality, at a time when interest in the root causes of inequality seems to have been lost; instead, the focus is on ‘managing diversity’ (as if the problem lies in ‘difference’) and grappling with the consequences, not the causes, of social exclusion.

Thu, 07/20/2017 - 15:16

The 24-7-52 job: family caregiving for young adults with serious and persistent mental illness

Few of the studies focusing on family caregiving have dealt with families caring for a young adult member with a serious and persistent mental illness. This qualitative study expands our understanding of the caregiving processes in these families. The narrative responses of 76 family caregivers from National Alliance for the Mentally Ill chapters across the United States were analysed using content analysis. Five caregiving processes were identified including monitoring, managing the illness, maintaining the home, supporting/encouraging, and socialising.

Thu, 07/20/2017 - 15:16

Making it work: good practice with young carers and their families

The needs of young carers and their families are a multi-agency responsibility that crosses both adults’ and children and families’ services. This practice guide is therefore aimed at all agencies that have contact with young carers and the people for whom they care. It brings together much of the thinking and experience behind the good practice developed so far and will provide a useful starting point for those new to this area of work and serve as a development resource for the more experienced.

Thu, 07/20/2017 - 15:16

Being there

The Parkinson's Disease Society has produced a DVD, Being There, which aims to answer the questions and concerns of people newly diagnosed with the condition. Being There provides an insight into symptoms, treatments and life with Parkinson's in general, and includes interviews with people with Parkinson's, carers, and expert healthcare professionals The DVD is divided into four chapters: introduction to Parkinson's disease; treating Parkinson's; living with Parkinson's; and about the Parkinson's Disease Society.

Thu, 07/20/2017 - 15:16

Young Carers Day 2007

The article reports on the Young Carers' Day 2007 outing organized by the Essex Council in England for young carers and their families. The city council's adolescent services has collaborated with young carers' groups in organizing the event. Over 300 young carers and their families have attended the event at the end of June 2007. It notes that there are 5,000 young carers in the city.

Thu, 07/20/2017 - 15:16

An experimental study on the effectiveness of a mutual support group for family caregivers of a relative with dementia in mainland China

When caring for an older relative with dementia, family members experience considerable distress and burden. Literature reviews show that supportive group interventions for these caregivers have significant positive effects on improving their distress and quality of life, but not consistent and conclusive. Limited research is found in Asian populations. This study tested the effectiveness of a 12-session bi-weekly mutual support group program for Chinese family caregivers of a relative with dementia in Hong Kong, when compared with standard family support service.

Thu, 07/20/2017 - 15:16

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