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Needs for care of patients with schizophrenia and the consequences for their informal caregivers

Background: Schizophrenia as a chronic mental disorder not only has far-reaching consequences for patients, but also for their family members or other informal caregivers. In this study, we investigated whether needs for care of patients with schizophrenia are related to (negative) consequences for their informal caregivers.

Thu, 07/20/2017 - 15:21

START (STrAtegies for RelaTives) coping strategy for family carers of adults with dementia: qualitative study of participants’ views about the intervention

Objectives To analyse the experience of individual family carers of people with dementia who received a manual-based coping strategy programme (STrAtegies for RelaTives, START), demonstrated in a randomised-controlled trial to reduce affective symptoms.

Design A qualitative study using self-completed questionnaires exploring the experience of the START intervention. Two researchers transcribed, coded and analysed completed questionnaires thematically.

Thu, 07/20/2017 - 15:21

Between elderly parents and adult children : a new look at the intergenerational care provided by the 'sandwich generation'

The ‘sandwich generation’ has been conceptualised as those mid-life adults who simultaneously raise dependent children and care for frail elderly parents. Such a combination of dependants is in fact very unusual, and the more common situation is when adults in late mid-life or early old age have one or more surviving parents and adult but still partly dependent children.

Thu, 07/20/2017 - 15:21

Making decisions for people with dementia who lack capacity: qualitative study of family carers in the UK

Objective To identify common difficult decisions made by family carers on behalf of people with dementia, and facilitators of and barriers to such decisions, in order to produce information for family carers about overcoming barriers.

Design Qualitative study to delineate decision areas through focus groups and complexity of decision making in individual interviews.

Setting Community settings in London.

Thu, 07/20/2017 - 15:21

Enhancing working partnerships with carers and families: a strategy and associated training programme

This paper describes the increased national focus on including families and carers in all aspects of mainstream mental health services. It proposes that the specific recommendations included in the National Service Framework for Mental Health be brought together in the form of a strategy to enhance working partnerships with families and carers. It advocates that the implementation of the NSF requires a comprehensive awareness and basic skills training in order that the consideration of families and carers becomes a routine part of mainstream services. 

Thu, 07/20/2017 - 15:21

Careworn country

This article considers the provision of informal care and how it is likely to be affected by changes in population and in family structure. It argues that, even with a promotion of actively involved citizens, there is likely to be a significant growth in demand for social care services as the structure of society shifts. This will have major implications for the role of social workers and for social policy.

Thu, 07/20/2017 - 15:21

Coping strategies of families in HIV/AIDS care: some exploratory data from two developmental contexts

Caring for a family member with HIV/AIDS presents multiple challenges that strain a family's physical, economic and emotional resources. Family carers provide physical care and financial support and deal with changes in family relationships and roles, often with little support from outside of the family. Carers in developing countries face even greater challenges, due to lack of medical and support services, poverty and widespread discrimination against those with HIV/AIDS.

Thu, 07/20/2017 - 15:21

Family lifeline

Hospice nurses are finding new ways to care for bereaved people, reports Jennifer Trueland

Bereavement care is a vital but under-funded part of palliative care services, and there is growing evidence that people who have lost a loved one are at increased risk of serious illness. The Hospice of St Francis in Berkhamsted is providing innovative care for families of patients before and after death. ‘Life-changing’ initiatives include cookery classes and pony rides.

Thu, 07/20/2017 - 15:21

FAIs: issues for families and carers

This article examines some of the areas covered by a review of the Fatal Accident Inquiry System in Scotland. The review followed the death of Roderick Donnett, a man with Down's syndrome who died whilst living in a care home. The article focuses specifically on key issue for families and carers as well as people with learning disabilities.

Thu, 07/20/2017 - 15:20

Providing care for an elderly parent: Interactions among siblings?

This article is focused on children providing and financing long-term care for their elderly parent. The aim of this work is to highlight the interactions that may take place among siblings when deciding whether or not to become a caregiver. We look at families with two children using data from the Survey of Health, Ageing and Retirement in Europe; our sample contains 314 dependent elderly and their 628 adult children. In order to identify the interactions between siblings, we have specified a two-person discrete game model.

Thu, 07/20/2017 - 15:20

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