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Perception and significance of an assistive technology intervention the perspectives of relatives of persons with dementia

Purpose: The aim of this study was to examine relatives’ perception of an assistive technology intervention aimed at persons with dementia (PwDs) and their relatives, and to examine whether, and how, experiences of the intervention process differed between relatives valuing the intervention to be of high, and relatives perceiving it to be of low significance. Method: A total of 47 relatives of PwDs within the Swedish Technology and Dementia project were interviewed telephonically using a modified version of the Patient perspective on Care and Rehabilitation process instrum

Thu, 07/20/2017 - 15:19

Bite-size guides to patient and public participation: guide 2: governance for participation

This guide sets out key principles to ensure that patient, carer and public voices are included in governance frameworks for commissioning and service development in the NHS and health care services. It also includes practical steps to put these principles in place and contains links to supporting material. The guide is based on a review of research, best practice reports and the views of stakeholders. It aims to support clinical commissioning groups and others to plan and deliver good patient and public participation. One of four guides developed by NHS England with their partners.

Thu, 07/20/2017 - 15:19

Lung cancer health care needs assessment: patients' and informal carers' responses to a national mail questionnaire survey

The objective of this study was to describe patients' and informal carers' perceptions of care received and services offered following a diagnosis of primary lung cancer. We prepared a prospective, national, mail questionnaire survey of 466 patients with a diagnosis of primary lung cancer and a lay carer of their choice. The setting was 24 randomly chosen hospitals throughout the UK, from a range of urban (n = 11) and rural settings (n = 13). The majority (76%/159) of responders were recipients of care from cancer units.

Thu, 07/20/2017 - 15:19

An investigation of carers' burden: before and after a total hip replacement

Osteoarthritis in the hip joint is a chronic degenerative condition, causing pain and disability. As the disease progresses, the individual's health deteriorates. This often results in one of the family members having to assume a carer role to assist the care receiver in personal and domestic activities of daily living. The purpose of this study was to investigate whether carers experienced stress from looking after individuals with osteoarthritis who were waiting for a total hip replacement.

Thu, 07/20/2017 - 15:17

Work-related factors and early retirement intention : a study of the Danish eldercare sector

Background: Western countries are experiencing an ageing and shrinking workforce in the eldercare sector. This study investigated whether 12 different work-related factors are associated with early retirement intentions of employees in the Danish eldercare sector.

Thu, 07/20/2017 - 15:17

Integrating health and social care: commentaries on the case studies in MCC 10.2

Three expert commentaries have been written about the approaches to health and social care integration in Sandwell, Hertfordshire and Barking & Dagenham which were described in the last issue of this journal. They cover organisational, user/carer and international perspectives

Thu, 07/20/2017 - 15:16

The experience and management of menstruation for women with learning disabilities

This paper describes a three‐phase study to investigate the experience and management of menstruation for women with learning disabilities. It focuses on the findings of the second phase of the study, which looked at the experiences of carers and health professionals. It describes the difficult issues that can arise when providing assistance around menstruation. The findings are discussed in relation to ideologies and sensitivities that exist around gender, sexuality and menstruation.

Thu, 07/20/2017 - 15:15

Expectations of support among White British and Asian-Indian older people in Britain: the interdependence of formal and informal spheres

The discourse surrounding community care characterises informal support being superior to and preferred over formal sources of support, with this distinction buttressed by policy changes. There is a lack of understanding of the interdependence of both spheres of support. This article argues that an individual's experience and expectation of one type of support is often made in relation to his or her understanding, expectation and experience of other sources of support.

Thu, 07/20/2017 - 15:15

Carers

The tasks provided by young carers, the support - or lack of it - on which they can draw and the effects the duties can have on their education.

It is estimated that carers carry out the equivalent of 57bn of caring a year. So, health and social services need to work together to support carers in their valuable, and often unrecognised, work.

Thu, 07/20/2017 - 15:15

Better preadmission assessment improves learning disability care

People with learning disabilities often have difficulty identifying and meeting their health needs and accessing appropriate health services. The Department of Health (1999a), NHS Executive (1998), and Mencap (1998) report that this group has increased needs compared with the general population, yet these needs are often poorly met. 

Thu, 07/20/2017 - 15:15