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Economic deprivation and its effects on subjective wellbeing in families of people with multiple sclerosis

Background: There has been limited research on the role of financial strain on the adjustment of people with multiple sclerosis.

Aims: This study examined the financial costs of MS and the impact of financial strain on the quality of life and adjustment of people with MS and their families.

Methods: Interviews were conducted with 16 health professionals, 26 people with MS and 11 family members of people who have MS.

Thu, 07/20/2017 - 15:09

The differences in perceived burdens between forensic and non-forensic caregivers of individuals suffering from schizophrenia

This paper examines the burdens experienced by caregivers of people with schizophrenia. In-depth interviews were undertaken with 107 caregivers (79 caregivers of clients with a forensic history and 28 caring for non-offenders) and categorised into burden dimensions using content analysis. The severity of the burdens faced was also recorded. The types of burden experienced by the two groups were examined using chi squared and t-tests. Results indicated that the two groups described a similar number of burdens.

Thu, 07/20/2017 - 15:09

A personal approach: to patients and carers

A short video aimed at patients and carers which features a number of professionals, patients and carers, who talk about how a more personalised approach to care can improve outcomes.

Thu, 07/20/2017 - 15:09

User and carer involvement in mental health services: from rhetoric to science

User or carer involvement is often seen as intrinsically worth while; but if such involvement is a good thing in itself, it would not matter whether changes resulted from it. However, most people argue for user or carer involvement because they think some useful change will follow as a consequence. Being involved can benefit users or carers both personally (for example, by empowering them or increasing their social contacts) and practically (for example, by enabling them to earn money or learn new skills).

Thu, 07/20/2017 - 15:09

Contrasting perceptions of health professionals and older people in Australia: what constitutes elder abuse?

Objectives: To explore the perceptions of family carers, older people and health professionals in Australia about what constitutes elder abuse.

Methods: The Caregiving Scenario Questionnaire (CSQ) was disseminated to health professionals from two metropolitan hospitals, older volunteers and carers of older people with dementia recruited for other studies.

Thu, 07/20/2017 - 15:09

Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review

Objectives: To review current understanding of the knowledge and information needs of informal caregivers in palliative settings. Data sources: Seven electronic databases were searched for the period January 1994–November 2006: Medline, CINAHL, PsychINFO, Embase, Ovid, Zetoc and Pubmed using a meta-search engine (Metalib®). Key journals and reference lists of selected papers were hand searched. Review methods: Included studies were peer-reviewed journal articles presenting original research.

Thu, 07/20/2017 - 15:09

Working in partnership with family carers: the importance of learning from carers' experiences

Purpose – This paper aims to discuss professionals working in partnership with family carers and the importance of learning from their experiences in designing and delivering support to themselves and people with dementia. 

Design/methodology/approach – Working in partnership with carers is a key goal of policy and practice. This paper demonstrates how this can work in practice. 

Thu, 07/20/2017 - 15:09

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