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The use of non-invasive ventilation at end of life in patients with motor neurone disease: A qualitatitve exploration of family carer and health professional experiences

Background: Non-invasive ventilation improves quality and quantity of life in patients with motor neurone disease who have respiratory failure. Use of non-invasive ventilation may, however, result in complex clinical issues for end-of-life care, with concerns as to whether and how it should be withdrawn.

Aim: This study aimed to describe carer and health professional experiences of end-of-life care of motor neurone disease patients using non-invasive ventilation.

Thu, 07/20/2017 - 15:18

The needs of older people with mental health problems according to the user, the carer, and the staff

Background: Individual assessment of needs has been recognised as the most appropriate way to allocate health and social care resources. These assessments, however, are often made by the staff or by a carer who acts as an advocate for the user themselves. Little is known about how these proxy measures compare to how individual patients perceive their own needs.

Aim: The aim of this study was to measure and compare ratings of need for older people with mental health problems by the older person themselves, their carer, and an appropriate staff member.

Thu, 07/20/2017 - 15:17

The experience and management of menstruation for women with learning disabilities

This paper describes a three‐phase study to investigate the experience and management of menstruation for women with learning disabilities. It focuses on the findings of the second phase of the study, which looked at the experiences of carers and health professionals. It describes the difficult issues that can arise when providing assistance around menstruation. The findings are discussed in relation to ideologies and sensitivities that exist around gender, sexuality and menstruation.

Thu, 07/20/2017 - 15:15

Better preadmission assessment improves learning disability care

People with learning disabilities often have difficulty identifying and meeting their health needs and accessing appropriate health services. The Department of Health (1999a), NHS Executive (1998), and Mencap (1998) report that this group has increased needs compared with the general population, yet these needs are often poorly met. 

Thu, 07/20/2017 - 15:15

Involving NHS users and carers in healthcare education

This paper is based on a presentation delivered by the Special Interest Group for Education and Training (SIGET) at the annual Community Practitioners' and Health Visitors' Association (CPHVA) conference. Service user and carer involvement in all aspects of health care delivery, including the educational process, is a key element of the government's modernisation programme. This paper considers the policy context that requires nurse educationalists to seek the views of service users and carers in planning quality healthcare education programmes.

Thu, 07/20/2017 - 15:15

Research into the Mental Health Act: a qualitative study of the views of those using or affected by it

Background : Britain's existing mental health legislation was introduced over 15 years ago. Since then, there has been considerable reorganisation of mental health care services but little research into the use of the Act in routine practice. Modernising Mental Health Services (1998) asserts that mental health legislation will be revised. Aim : The study investigates opinions about the strengths and weaknesses of Parts II and X of the Mental Health Act (1983) of those affected by it.

Thu, 07/20/2017 - 15:14

A personal approach: to healthcare professionals

A short video aimed at health professionals which features a number of professionals, patients and carers, who talk about how a more personalised approach to care can improve outcomes.

Thu, 07/20/2017 - 15:12

Communication and interaction within dementia care triads: developing a theory for relationship-centred care

This article develops an approach towards dementia care that highlights the nature of dementia care triads comprising the person with dementia, their informal carer, and the health and social professional. In particular, the article highlights various social practices that are shown, from our practice, to contribute towards the inclusion or exclusion of particular triad members. The article reviews existing work on triadic interaction, particularly in relationship to dementia care. Various communication processes are identified and illustrated using examples taken from casework.

Thu, 07/20/2017 - 15:12

Riding the diabetes rollercoaster: A new approach for health professionals, patients and carers

This work includes foreword by Ian Botham, OBE, former England Cricket Captain and father of a daughter with Type 1 Diabetes. This groundbreaking book reveals how science and medicine have traditionally tried to make diabetes simple and orderly, despite its obvious messiness and complexity. The result has left patients, carers and health professionals confused and frustrated. Using complexity science, "Riding the Diabetes Rollercoaster" provides a radical new approach to understanding and managing diabetes that embraces its uncertainties and challenges.

Thu, 07/20/2017 - 15:10

Who cares in England and Wales? The Positive Care Law: cross-sectional study

Background: The inverse care law proposing that medical services are distributed inversely to population health needs, and that this law operates more completely where medical care is most exposed to market forces, was first suggested by Tudor Hart in 1971. This paper considers whether an inverse care law can be observed for the provision of informal care as well as for medical care.

Aim: Using data from the 2001 census we sought to investigate the contemporary relevance of the inverse care law.

Thu, 07/20/2017 - 15:09