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Employment and Informal Care: Sustaining Paid Work and Caregiving in Community and Home-based Care

Informal care provides the often hidden foundations of policies promoting care in the community and Ageing in Place. This paper examines the current impasse concerning those who are employed and seek to provide care, canvassing current and future possibilities for finding a way through the existing conflict between sustaining employment and providing informal care in the home. Focusing on the issues that emerge regarding support of older (aged) care recipients, the paper first considers the demographic, economic and democratic and governmental policy causes of the current problems.

Thu, 07/20/2017 - 15:14

The carers of Hospital in the Home patients focus on clinical processes, procedures and the prediction of deterioration

The aim of this study was to explore the psychological processes and information needs in a group of 78 Hospital-in-the-Home (HITH) carers, randomly selected from two university teaching hospital HITH programs in Melbourne. Semi-structured interviews were conducted and explored with a computerised lexical thematic content analysis program. The results revealed that psychological themes of carers were mainly related to HITH clinical processes, procedures and the prediction of complications or deterioration of the patient.

Thu, 07/20/2017 - 15:14

The well-being of young people who care for a dependent relative: An interpretative phenomenological analysis

Developing health care systems have placed an emphasis on unpaid, informal care giving from family members as a community health resource. It is estimated that there are between 19,000 and 51,000 young carers in the UK who are at increased risk of physical and psychological ill health. Therefore, the aim of this study was to explore the personal experiences of young carers in relation to their well-being using interpretative phenomenological analysis (IPA). Semi-structured interviews were carried out with five young carers and the verbatim transcripts served as the data for an IPA.

Thu, 07/20/2017 - 15:13

Little-Known Program Offers Help To People Caring for Aging Relatives

Offers details about a little-known federal program aimed at helping individuals who provide long-term care for aged relatives or loved ones called the National Family Caregiver Support Program.

Thu, 07/20/2017 - 15:13

Time-bound opportunity costs of informal care: Consequences for access to professional care, caregiver support, and labour supply estimates

The opportunity costs associated with the provision of informal care are usually estimated based on the reduced potential of the caregiver to partake in paid work (both in terms of whether they are able to undertake paid work, and if so the hours of work undertaken). In addition to the hours of informal care provided, these opportunity costs are also likely determined by the necessity to perform particular informal care tasks at specific moments of the day. The literature, to date, has largely overlooked this dimension of informal care.

Thu, 07/20/2017 - 15:12

The complex nature of informal care in home-based heart failure management

Aim. This paper is a report of a study to examine the complexities of informal caregiving for people with chronic heart failure. Background. Little is known of the activities involved and underlying informal care. Heart failure is a common and burdensome condition in which carers play an important management role. Method. Semi-structured interviews were carried out with 30 informal carers nominated by patients with mild-to-moderate heart failure (24 spouses, four children, one sibling and one neighbour).

Thu, 07/20/2017 - 15:11

The hard work starts now: a glimpse into the lives of carers of community-dwelling stroke survivors

Aims and objectives.  To explore the personal experiences of carers of stroke survivors and to elicit their views and opinions of what constitute the major issues and concerns of people in their situation.

Background.  The unexpected nature of stroke can propel people into the role of carer with little or no warning. Some carers of stroke survivors suffer from considerable stress and a range of psychological and physical disorders.

Design.  A small-scale qualitative study of experienced carers of stroke survivors.

Thu, 07/20/2017 - 15:11

Quality of life among older people in Sweden receiving help from informal and/or formal helpers at home or in special accommodation

The present study describes and compares quality of life (QoL) and factors which predict QoL among people aged 75 years and over who receive help with activities of daily living (ADLs) from formal and/or informal helpers. The subjects were living at home or in special accommodation in Sweden. A postal questionnaire was sent to a randomly selected and age-stratified sample of 8500 people. The response rate was 52.8% (n = 4337), and 1247 people [mean age (± SD) = 86.4 ± 5.9 years] received help and indicated who helped them with ADLs.

Thu, 07/20/2017 - 15:10

Education of informal caregivers in a home environment

Background: The paper is a review of relevant information from literature sources concerned with the phenomenon of education. The authors refer to education as to a process of personality development influenced by both formal educational institutions and informal environmental impact. Informal environment comprises the family, community groups, counselling facilities and friends. Due to increasing health expenditure, care is moved away from institutions. Therefore, the educational process is also encountered in patients'/clients' homes.

Thu, 07/20/2017 - 15:09

Towards an understanding of the lives of families affected by stroke: a qualitative study of home carers

Aims and objectives.  To explore the personal experiences of carers of stroke survivors and to elicit their views and opinions of what constitute the major issues and concerns of people in their situation.

Background.  The unexpected nature of stroke can propel people into the role of carer with little or no warning. Some carers of stroke survivors suffer from considerable stress and a range of psychological and physical disorders.

Design.  A small-scale qualitative study of experienced carers of stroke survivors.

Thu, 07/20/2017 - 15:09

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