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Training in communication skills for informal carers of people suffering from dementia: a cluster randomised clinical trial comparing a therapist led workshop and a booklet

This study evaluates whether a short training workshop in communication techniques is more effective than an information booklet for improving communication skills in informal carers of people suffering from dementia. 30 informal carers were allocated to the workshop sessions and 15 to the booklet. Outcome measures included awareness of communication strategies; perceived frequency of communication breakdown at home, and the associated level of distress; general stress; and consumer satisfaction.

Thu, 07/20/2017 - 15:23

Towards a more inclusive vision of dementia care practice and research

Drawing on recent literature this article explores the development of research with family carers and people with dementia and identifies a number of themes that have emerged over time. It raises fundamental questions about the nature and purpose of research and the balance of power between researchers, family carers and people with dementia. Existing notions of expertise and knowledge are called into question and the article concludes with a call for a more empowering and inclusive model of research and practice based upon a relationship-centred approach to care.

Thu, 07/20/2017 - 15:23

The recognition of and response to dementia in the community: lessons for professional development

Adult learning approaches require professionals to identify their learning needs. Learning about dementia syndromes is a complex task because of the insidious onset and variable course of the disease processes, the inexorability of cognitive and functional loss, and the emotional impact of neurodegenerative disorders on those experiencing them and on their family and professional carers.

Thu, 07/20/2017 - 15:23

Caring for older people in the 21st century: 'notes from a small island'

Drawing on carer narratives from research undertaken in New Zealand, this paper considers the interrelationship between place and the care-giving experience. In doing so, it considers: first, how informal carers of older people experience the transition in the place of care from the home to care homes; second, how they negotiate new identities for themselves as carers in these new care settings; and third, carers' views on how we might develop more inclusive models of care in care home settings.

Thu, 07/20/2017 - 15:23

Updated review of research on risk and adult social care in England

This paper updates an earlier extensive review of research into the incidence and management of risk in adult social care in England, and addresses gaps identified in the earlier review. This paper aimed to identify only empirical research published since 2007 and concentrated on research conducted and published within the UK.

The review:

Thu, 07/20/2017 - 15:23

Bridging troubled waters: family caregivers, transitions and long term care

Families are the bedrock of long-term care, but policymakers have traditionally considered them “informal” caregivers, as they are not part of the formal paid caregiving workforce. As chronic and long-term care systems have become more complex and as more demanding tasks have been shifted to families, this view is no longer sustainable. The care transition process offers a critical opportunity to treat family caregivers as important care partners. Enhancing their involvement, training, and support will contribute to reducing unnecessary rehospitalizations and improving patient outcomes.

Thu, 07/20/2017 - 15:22

An exploratory qualitative study on relationships between older people and home care workers in South Korea: the view from family carers and service providers

Although the proportion of older people using home care services has significantly increased in East Asian countries, the issue of the relationships between older people and home care workers in the East Asian context has received scant attention from scholars. This exploratory qualitative study aims to explore these relationships under the new Korean long-term care insurance system. Semi-structured in-depth interviews were conducted with 22 family carers and private-sector home care service providers (home care workers and provider managers).

Thu, 07/20/2017 - 15:22

The attitudes of carers and old age psychiatrists towards the treatment of potentially fatal events in end-stage dementia

BACKGROUND: Deciding how to treat patients with end-stage dementia developing potentially fatal events has long been contentious. Under expected new legislation the role of carers is likely to increase. Old age psychiatrists frequently have to decide between active or palliative approaches to such patients. Little is known concerning the comparative attitudes of carers and old age psychiatrists. This research examined how their attitudes differed.

Thu, 07/20/2017 - 15:22

Is there a future for the informal homecare of older people in a changing society?

The objective of the research reported here was to provide an opportunity to raise issues relevant to the ongoing debate on informal care of older people by exploring the attitudes of both men and woman towards the care of dependant older people. The sample (n = 174) was drawn from age cohorts 20-39 years (n = 90) and 40-59 years (n = 84). The men and women who participated in the study were members of the general public.

Thu, 07/20/2017 - 15:22

Care management and care provision for older relatives amongst employed informal care-givers

This paper examines care management, or ‘managerial care’, a type of informal care for older adults that has been relatively neglected by researchers. While previous research has acknowledged that care-giving may involve tasks other than direct ‘hands-on’ care, the conceptualisation of managerial care has often been vague and inconsistent. This study is the first explicitly to investigate managerial care amongst a large sample of carers.

Thu, 07/20/2017 - 15:22

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