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'A whole month of pleasure' - making music on the South Downs

This article describes an innovative project for people with dementia and their carers at Glyndebourne Opera House. During November and December 2008 and 2009, the Glyndebourne education department provided a series of 4 sessions for people with dementia and their carers. The Glyndebourne project was jointly funded and developed through a partnership between Glyndebourne Festival Opera and the Lewes Villages Dementia Carers Outreach Service. Between 20 and 30 people with dementia and their carers took part in the project each year.

Thu, 07/20/2017 - 15:22

Quality of relationships between care recipients and their primary caregivers and its effect on caregivers' burden and satisfaction in Israel

Research on the impact of quality of relationships between primary caregivers and their care recipients on burden and satisfaction with caregiving is still rare. The sample included 335 dyads of primary caregivers and care recipients who were cognitively intact. Face-to-face interviews were conducted at the respondents' homes using structured questionnaires. No significant correlation between caregiving burden and caregiving satisfaction was found.

Thu, 07/20/2017 - 15:21

What are the factors that facilitate or hinder resilience in older spousal dementia carers? a qualitative study

Objectives: Much is known about the factors making caring for a spouse with dementia burdensome. However, relatively little is known about factors that help some spouses become resilient. We define resilience as ‘the process of negotiating, managing and adapting to significant sources of stress or trauma’. We aimed to assess whether spousal dementia carers can achieve resilience and to highlight which assets and resources they draw on to facilitate or hinder resilience, using an ecological framework .

Thu, 07/20/2017 - 15:21

Preferences for receiving information among frail older adults and their informal caregivers : a qualitative study

Background: Patient involvement in clinical decision making is increasingly advocated. Although older patients may be more reluctant to become involved, most do appreciate being informed. However, knowledge about their experiences with and preferences for receiving information is limited, and even less is known about these topics for frail older people.

Objective: To explore the experiences of frail older people and informal caregivers with receiving information from health care professionals as well as their preferences for receiving information.

Thu, 07/20/2017 - 15:21

A burden shared

As people with learning difficulties live longer their carers become correspondingly older. A council project in south London is helping meet the needs of older carers. [Introduction]

Thu, 07/20/2017 - 15:21

Shared care in Sheffield

Reports on a support scheme in Sheffield for family carers over the age of 70, who care for a person with learning difficulties. The scheme won the carers category at this year's Community Care awards.

Thu, 07/20/2017 - 15:21

Drawing the line: the boundaries of volunteering in the community care of older people

Volunteers can play important roles in the provision of support and care to frail or confused older people living in their own homes. There are conflicting expectations as to what these roles should be since there are unclear boundaries with those of paid care and with informal care. The present article explores some of these boundaries, drawing on material from a study of 14 volunteer schemes in England. The aim of the research was to explore the roles played by volunteers in the overall care division of labour.

Thu, 07/20/2017 - 15:21

Caregivers' relationship closeness with the person with dementia predicts both positive and negative outcomes for caregivers' physical health and psychological well-being

Closer relationships between caregivers and care recipients with dementia are associated with positive outcomes for care recipients, but it is unclear if closeness is a risk or protective factor for the health and psychological well-being of caregivers. We examined 234 care dyads from the population-based Cache County Dementia Progression Study. Caregivers included spouses (49%) and adult offspring (51%). Care recipients mostly had dementia of the Alzheimer's type (62%).

Thu, 07/20/2017 - 15:21

The carer's role in planning care for people with dementia

For the past 15 years a central theme of government health-care policy has been to encourage the health service to change the way it relates to those who use it. Recent health policy documents such as Our National Health: A plan for action, a plan for change (Scottish Executive, 2000) emphasise a more integrated way of working that reflects co-operative partnerships.

Thu, 07/20/2017 - 15:21

The nutrition-related needs of family caregivers

Models depicting the strain and burden that caregivers experience are well known. But none of the models include nutrition, despite its importance to health. About 20 percent of caregivers report changes of appetite and weight. In this article, the author explores nutritional status and its relationship to the experience of caregivers—and their care recipients.

Thu, 07/20/2017 - 15:21

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