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Coping with dementia and older families of adults with Down syndrome

The authors studied a group of older carers of aging adults with Down syndrome (DS) to ascertain what effects such caregiving may have on them given the presence or possibility of age-associated decline or dementia. The study also examined the comparative levels of care provided, key signs noted when decline was beginning, the subjective burden experienced, and what were the key associated health factors when carers faced a changed level of care.

Thu, 07/20/2017 - 15:19

All in the same boat

Hampshire: Alzheimer Cafe UK – a new approach to support for people with dementia and their carers – has been launched in Hampshire. Kandy Redwood explains.

Thu, 07/20/2017 - 15:19

Homeward Bound: Co-Designing the Pathway from Hospital to Home for Older People

Introduction and practice change: This project utilisied co-production methodology to enable health and social care practitioners, older people and their informal carers to work together to codesign an integrated care pathway from hospital to home. Aim and theory of change: The project aimed to improve the experience of older people transitioning from hospital to home. To achieve this aim the group co-designed a two-pronged service intervention: i. an admissions coordinator; and ii. discharge at home. Timeline: This has been a 20-month project, initiated in July 2013.

Thu, 07/20/2017 - 15:19

Trends in informal care in Great Britain during the 1990s

The population of adult carers in Great Britain declined during the 1990s while the proportion of those heavily involved in providing informal care increased. The intensification of care-giving was associated with an increasing number of caring relationships that typically make heavy demands on the carer: spouse care and caring for a child or parent. The provision of informal care by friends and neighbours diminished resulting in an overall decline in care-giving between households. However, parents were increasingly looked after in their own homes by non-resident daughters.

Thu, 07/20/2017 - 15:19

Electronic tracking for people with dementia who get lost outside the home: a study of the experience of familial carers

Purpose: The study aimed to elicit a description of GPS (global positioning system) tracking use in the care of people with dementia in domestic settings and to generate hypotheses about impact.

Procedures: Users were recruited through a commercial provider. Qualitative interviews with 10 carers were completed to generate an in-depth description of how the devices were used and the perceived impact. A questionnaire was administered to ascertain sample characteristics.

Thu, 07/20/2017 - 15:19

The role of dementia training programmes in reducing care-giver burden

Family care-givers play a vital role in the support of people with dementia. In addition to opportunity costs, care-giving has been linked to a wide range of negative outcomes, including psychological disturbance, physical health problems, relationship changes and social activity restrictions (Donaldson et al, 1997). Carers identify access to information and training as an essential requirement in their struggle to continue in the care-giving role (Blackwell et al, 1992). To what extent are these training needs currently met?

Thu, 07/20/2017 - 15:19

Cooking up a problem in the kitchen

Changes in cooking, food preparation and eating habits may give rise to concern among relatives of people with dementia. Jill Manthorpe, Roger Watson and Anne Stimpson report on survey findings on this theme, and draw out messages for services

Thu, 07/20/2017 - 15:19

Barriers to community support for the dementia carer: a qualitative study

Objectives: To understand how carers of dementia sufferers gain access to community support and to determine potential barriers for carers.

Design: Qualitative study using semi-structured interviews of carers after an Aged Care Assessment Team intervention.

Setting: Australian metropolitan Aged Care Assessment Team.

Subjects: 24 live-in carers of dementia sufferers.

Thu, 07/20/2017 - 15:19

Planning ahead: meeting the needs of older people with intellectual disabilities in the United Kingdom

Despite the acknowledged increase in the number of older people with intellectual disabilities (ID) in the UK, the age-related health and social care needs of this population have yet to be fully understood and addressed. Although there is some evidence of positive development, the current picture of service provision is characterized by fragmentation and limited choice of resources and specialist care. Policy aims are variably met and inconsistently applied.

Thu, 07/20/2017 - 15:19

The effect on caregiver burden of a problem-based home visiting programme for frail older people

Objective: caregiver effects of geriatric care models focusing primarily at the patient have not been consistently studied. We studied caregiver effects of a nurse-led comprehensive geriatric evaluation and management (GEM) programme for community-dwelling frail older people that showed—in a randomised comparison with usual care-–health-related quality of life benefits for the care receivers.

Thu, 07/20/2017 - 15:19

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