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Patient education

Testing a pain self-management intervention by exploring reduction of analgesics' side effects in cancer outpatients and the involvement of family caregivers: a study protocol (PEINCA-FAM)

Background: Pain is one of cancer patients' most frequent and distressing symptoms; however, analgesics' side effects often increase symptom burden. Further, with the home rapidly becoming the primary cancer care setting, family caregivers (FCs) commonly play central roles in patients' pain self-management, but with little or no preparation. One US-tested intervention, the PRO-SELF© Plus Pain Control Program (PCP), designed to support cancer outpatients and their FCs in pain self-management, is currently being tested in the Swiss multi-centre PEINCA study.

Wed, 06/05/2019 - 12:57

When looking after a loved-one is too much: caring for carers

For community nurses, the first step in ensuring a carer's wellbeing is to be mindful of not adding to the person's burden themselves. To create and maintain safe and effective care for patients relies on collaboration between nurses and the families and carers, which may involve nurses delegating caring duties to a carer. But, in line with the professional code, this should only happen if the carer is competent, supervised, supported, and understands the task, its complexity and expected outcomes (Nursing and Midwifery Council, 2015).

Wed, 04/10/2019 - 11:03

Meeting the Informational, Educational, and Psychosocial Support Needs of Persons Living With Dementia and Their Family Caregivers

Background and Objectives: Meeting the unique and changing needs of individuals living with Alzheimer's disease and their family caregivers can be very challenging given the dynamic and often unpredictable nature of the disease. Effective programs are available to help families manage the challenges they will face. Research Design and Methods: This article first describes the educational, information, and support needs of individuals living dementia and their family caregivers across all stages of Alzheimer's.

Wed, 11/21/2018 - 16:36

Preferences for receiving information among frail older adults and their informal caregivers : a qualitative study

Background: Patient involvement in clinical decision making is increasingly advocated. Although older patients may be more reluctant to become involved, most do appreciate being informed. However, knowledge about their experiences with and preferences for receiving information is limited, and even less is known about these topics for frail older people.

Objective: To explore the experiences of frail older people and informal caregivers with receiving information from health care professionals as well as their preferences for receiving information.

Thu, 07/20/2017 - 15:21

Living with Parkinson's disease in the community: improving assessments and interventions

Understanding how long-term illness affects quality of life for patients and families is central to providing individualised, patient-focused care in the community, as Leire Ambrosio and colleagues explain

Thu, 07/20/2017 - 15:20

Special Needs: Caring for the Older Adult with Down Syndrome

Over the last 30 years, the life expectancy of people with Down syndrome has increased dramatically. Significant medical advances have allowed affected persons to be seen more in the hospital setting, making it imperative that nurses understand their health care needs in order to provide positive health outcomes.

Thu, 07/20/2017 - 15:08

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