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Patient views

Informal care: the views of people receiving care

Informal care is perceived to be the best option for people who require assistance to look after themselves. National and international studies of informal care have focused on the carer, not on the care provided, or the needs and experiences of the care recipients. In the present study, 55 people receiving informal care (21 males and 24 females, mean age = 67.6) were surveyed to determine the type of assistance that they receive, perceptions of the quality of their care, feelings about being looked after by a carer and their perceptions of the services which would be useful.

Thu, 07/20/2017 - 15:24

Community matrons: patients' and carers' views of a new service

This article presents the results of a survey of patients’ and carers’ views about a community matron service in England. Key themes identified by patients and carers included the reliability of the service, the confidence it gave to patients and carers, improved links with GP services, and anecdotal evidence that the service helped to avoid admission to hospital. The authors believe the survey demonstrates a positive view of the community matron service which justifies continued investment in the role.

Thu, 07/20/2017 - 15:16

Developments in mental health service provision: views of service users and carers

This paper reports on a study in two NHS mental health trusts in England in 2008-2009. Data were collected from staff, service users and carers to inform service and workforce developments. The findings were reported relate to service users and carers and concur with staff views. They relate to modernisation of services, the challenges of a multiplicity of stakeholders and organisations, as well as the need to involve users and carers in developments.

Thu, 07/20/2017 - 15:13

Patients' and carers' views on dementia workforce skills

Purpose – Through consultation with people living with dementia and carers, this paper aims to identify skills that patients and carers feel need to be developed in the workforce. This work is part of a project to develop competencies for the West Midlands dementia workforce.

Design/methodology/approach – People living with a dementia and carers were contacted through cafés, a carers' group and memory group, and two people contributed interviews to the analysis. All materials were analysed qualitatively using thematic analysis.

Thu, 07/20/2017 - 15:13

Early intervention in psychosis: client and carer perspectives

AIM: To evaluate service users' and carers' views on the early intervention in psychosis service in relation to best-practice guidelines. METHOD: Both groups were sent a questionnaire on their experiences of care provided. RESULTS: The majority responded positively to many items, indicating they thought the team met best-practice guidance.

Thu, 07/20/2017 - 15:11

Psychiatric out-patient clinics for older adults : highly regarded by users and carers, but irreplaceable?

AIMS AND METHOD: The aim of this study was to explore older users' and carers' views of attending out-patient clinics for older adults. A questionnaire was designed to be distributed to all patients attending out-patient clinics for a period of 1 month in January 2007. RESULTS: The response rate for returning the completed questionnaire was 71 per cent, and 95 per cent of these respondents were satisfied with their overall experience of attending out-patient clinics.

Thu, 07/20/2017 - 15:11

How do people with cancer wish to be cared for in primary care? Serial discussion groups of patients and carers

Background. In most economically developed countries, patients, their informal and professional carers and policy makers are calling for more care in the community.

Objectives. To involve patients with cancer, and their carers, in designing a framework for providing effective cancer care in primary care.

Methods. Two discussion groups comprising 18 people with current cancer and carers met monthly over a year in the south of Scotland.

Thu, 07/20/2017 - 15:10

Community-based primary health care for older adults: A qualitative study of the perceptions of clients, caregivers and health care providers

Background: Older persons are often poorly served by existing models of community-based primary health care (CBPHC). We sought input from clients, informal caregivers, and health care providers on recommendations for system improvements.

Methods: Focus group interviews were held with clients, informal caregivers, and health care providers in mid-sized urban and rural communities in Ontario. Data were analyzed using a combination of directed and emergent coding. Results were shared with participants during a series of feedback sessions.

Thu, 07/20/2017 - 15:10

Interactive health communication applications for chronic disease: patient and carer perspectives

BACKGROUND: Interactive Health Communication Applications (IHCAs) are computer-based, usually web-based, information packages for patients that combine health information with at least one of social support, decision support, or behaviour change support. These are innovations in health care and their effects on health are uncertain.

OBJECTIVES: To assess the effects of IHCAs for people with chronic disease.

Thu, 07/20/2017 - 15:10

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