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Good days and bad days: the lived experience and perceived impact of treatment with cholinesterase inhibitors for Alzheimer's disease in the United Kingdom

Although heralded as a major breakthrough in the treatment of Alzheimer’s disease the experience and impact of using cholinesterase inhibitors (CHEIs) from the perspective of people with Alzheimer’s disease has not been widely reported. This qualitative study reports the lived experience of CHEI users and the perceived impact of the treatment. The views and experiences of 12 older people referred for memory problems or receiving treatment and 11 associated family carers were obtained using a combination of semi-structured interviews and focus groups.

Thu, 07/20/2017 - 15:14

More than one wavelength : identifying, understanding and resolving conflicts of interest between people with intellectual disabilities and their family carers

The present paper describes conflicts of interest in families which include someone with intellectual disabilities. Data were taken from a study concerned with the 1995 Carers Act. The research examined the experiences and views of 51 families who had some kind of assessment by a social services department. Cases were analysed where it was found that carers, the people for whom they cared and the assessors did not agree about such conflicts. Assessors sometimes stereotyped families and spoke of conflicts of interest when the situation was more complex.

Thu, 07/20/2017 - 15:13

Development of the carer well-being and support (CWS) questionnaire

Purpose – A psychometrically validated measure is needed to evaluate outcomes in carers of people with mental health problems, including dementia. This study aims to develop and validate the Carer well‐being and support questionnaire (CWS).

Thu, 07/20/2017 - 15:13

Care at home for people with dementia: as in a total institution?

This article examines three kinds of social relationship likely to be present when people with dementia are cared for at home by relatives or friends: custodial care, an intimate relationship, and home-life. Using Goffman's three defining aspects of custodial care – routinisation, surveillance and mortification of the self – the paper examines whether these characterised the care of people with dementia at home and, if so, whether they conflicted with the intimate relationship and with home-life.

Thu, 07/20/2017 - 15:12

Cost effectiveness of a manual based coping strategy programme in promoting the mental health of family carers of people with dementia (the START (STrAtegies for RelaTives) study): a pragmatic randomised controlled trial

Objective To assess whether the START (STrAtegies for RelatTives) intervention added to treatment as usual is cost effective compared with usual treatment alone. Design Cost effectiveness analysis nested within a pragmatic randomised controlled trial. Setting Three mental health and one neurological outpatient dementia service in London and Essex, UK. Participants Family carers of people with dementia. Intervention Eight session, manual based, coping intervention delivered by supervised psychology graduates

Thu, 07/20/2017 - 15:12

Effects of positive cognitions and resourcefulness on caregiver burden among caregivers of persons with dementia

Currently, 5.4 million persons in the USA are diagnosed with dementia, and this number is projected to rise to 7.7 million by the year 2030. Family caregivers provide up to 80% of the care needed by persons with dementia and published work suggests that caring for persons with dementia can be very costly to caregivers' health. This study examined the mediating and the moderating effects of positive cognitions on the relationship between caregiver burden and resourcefulness in 80 caregivers of persons with dementia.

Thu, 07/20/2017 - 15:11

Aggression and trauma experiences among carer-relatives of people with psychosis

Background: Exposure to aggression and associated psychological outcomes are poorly characterised among carer-relatives of people with psychosis.

Method: Carer-relatives (N = 106) completed questionnaires assessing socio-demographics and perceived prevalence of aggression in their caring role in the last 12 months. Carers exposed to moderate–severe levels of aggression were re-approached to assess PTSD and coping strategies.

Thu, 07/20/2017 - 15:11

When carers need caring

When people with learning disabilities have care duties thrust upon them they can become isolated and stressed. The author looks at how they can be better supported. [Journal abstract]

Thu, 07/20/2017 - 15:11

Using meta-ethnography to understand the emotional impact of caring for people with increasing cognitive impairment

The majority of people with degenerative neurological conditions are cared for within their own families. Cognitive impairment can be a significant and increasing symptom of these conditions. In this article we report how a team of experienced researchers carried out a meta-ethnography of qualitative research articles focusing on the impact of caring for a loved one with cognitive impairment. We followed the seven-step process outlined by Noblit and Hare. Synthesized findings from 31 papers suggest emotional impact is complex and uncertain and varies from day to day.

Thu, 07/20/2017 - 15:10

Cuts and lack of assessments leave carers 'at breaking point'

Mencap finds no let up in stress for carers of people with learning disabilities as councils fail to assess their needs and make inadequate provision of short breaks. [Journal abstract]

Thu, 07/20/2017 - 15:10