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Only connect: client, carers and professional perspectives on community care assessment process

Differences in perspective between clients, carers and practitioners are familiar from the literature. Findings from two research projects are reported here, which identify mismatched perspectives and appear to question the foundations on which community care policy and practice rest. The article discusses features of the policy and practice context that contribute to the likelihood of divergent views about need and appropriate or effective service provision within community care.

Thu, 07/20/2017 - 15:16

Supporting ‘Young Carers’ in Kenya: From Policy Paralysis to Action

African children who care for sick or dying adults are receiving less than optimal support due to confusion about whether or not young caregiving constitutes a form of child labour and the tendency of the authorities to play it “safe” and side with more abolitionist approaches to children's work, avoiding engagement with support strategies that could be seen as support of child labour.

Thu, 07/20/2017 - 15:16

Policy into practice: carers

Presents an overview of recent measures to support carers.

Thu, 07/20/2017 - 15:15

Variant Creutzfeldt-Jakob disease: cost borne by families

This study aims to: estimate the costs borne by families caring for patients with variant Creutzfeldt-Jakob disease (vCJD); to contextualise results to recent initiative; and consider the methodological problems of estimating costs of care. Semi-structured interviews and a follow-up postal questionnaire, eliciting costs to families both before and after the patient's death, were carried out participants included 19 families of patients with vCJD. Cost profiles were constructed, detailing key time and financial costs associated with their relative's illness and death accursing to families.

Thu, 07/20/2017 - 15:15

Standard six: caring about carers

Sixth in the series on the National Service Framework, this article describes a national education and support programme for carers developed by the National Schizophrenia Fellowship.

Thu, 07/20/2017 - 15:15

Working in partnership with adult informal carers: policy and practice

In England and Wales alone, more than 5 million informal carers provide support to individuals who wish to remain within their own homes. However, research has identified that there is a limited understanding of the informal carer role among health professionals, and deficits in information sharing and the involvement of informal carers in decision making in relation to care packages. This article considers recent policy relating to this area, placing particular emphasis on the role of the district nurse in working in partnership with informal carers.

Thu, 07/20/2017 - 15:14

Developing local area co-ordination in Scotland: supporting individuals and families in their own communities

Following its development and evaluation in Western Australia, local area co‐ordination (LAC) has been included as an integral part of the strategy for people with learning disabilities in Scotland. LAC responds to the wishes of people with learning disabilities and family carers for more direct access to services and for continuity and co‐ordination of support. Local area co‐ordinators (LACs) work directly with individuals and families to help them find the information and local supports they need.

Thu, 07/20/2017 - 15:14

Carers and indicators of vulnerability to social exclusion

Discusses the concept of social exclusion in relation to carers and asks why it has taken so long to link carers with the social exclusion agenda.

Thu, 07/20/2017 - 15:14

Towards the creative management of risk: perceptions practices and policies

The present paper examines the importance of risk when supporting individuals with learning disabilities. It uses data from a small research project designed to examine the perceptions of risk held by users, carers and professionals, as well as the risk policies of agencies. Risk is an important issue in the provision of support. The service users in the present study saw risk primarily in terms of hazards. The carers were concerned about hazards and harm, but recognized the need for risk-taking. The professionals emphasized the importance of reasonable risk-taking.

Thu, 07/20/2017 - 15:14

Family caregivers in the USA

Looks at the situation of family carers in the USA. Discusses how the USA has been slower to recognise the contribution of family carers than in the UK and how they face a more uncoordinated environment.

Thu, 07/20/2017 - 15:13