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Prevention

Gathering tips from carers to support people with dementia: an adaptation of the TOP 5 program for community use

Aim: Behavioral and psychological symptoms of dementia are often managed inappropriately with antipsychotic medicines. The TOP 5 program, which involves recording up to five relevant and meaningful tips that assist in personalizing care for the person with dementia, has been tested in the hospital setting and transitions of care in Australia, and has been found to be useful. Our study aimed to adapt the TOP 5 program as a strategy to support people with dementia in a primary care setting and to test the acceptability of our adapted TOP 5 program materials.

Wed, 11/21/2018 - 16:31

Factors influencing confabulation in Japanese patients with Alzheimer's disease

Background: Confabulations are often observed in patients with Alzheimer's disease (AD) and can increase family caregivers’ burdens. Previous studies have focused on the relationship between confabulation and cognitive ability. However, few studies have investigated the association between confabulation and familial factors. Here, we aimed to examine whether confabulation relates to familial factors, such as the level of family caregivers’ expressed emotion or the level of functioning of the family.

Fri, 11/16/2018 - 10:59

Effects of Methicillin-Resistant Staphylococcus aureus/Multiresistant Gram-Negative Bacteria Colonization or Infection and Isolation Measures in End of Life on Family Caregivers: Results of a Qualitative Study

Background: Little is known about the experiences of family caregivers of hospitalized patients with confirmed methicillin-resistant Staphylococcus aureus/multiresistant gram-negative bacteria (MRSA/MRGN) diagnosis at the end of life. The study at hand is a subproject of an interdisciplinary cooperation project that aims at developing a patient-, family-, and team-centered approach in dealing with MRSA/MRGN-positive hospitalized patients in palliative and geriatric care.

Fri, 10/19/2018 - 15:33

Caregivers needing care: the unmet needs of the family caregivers of end-of-life cancer patients

Purpose: Family caregivers play a significant role in the care of cancer patients, especially in their end of life. Identifying and meeting the needs of these caregivers is essential to improving their quality of patient care. This study was conducted to identify the unmet needs of the caregivers of end-of-life cancer patients. Methods: A total of 18 semi-structured interviews were held with the family caregivers of end-of-life cancer patients using purposive sampling.

Fri, 10/19/2018 - 15:11

Carer burden in dementia

For the carer, supporting a person suffering from dementia of an aetiology is stressful. This review summarises some of the factors associated with stress and some of the interventions aimed at alleviating distress.

Thu, 07/20/2017 - 15:22

Effectiveness of cognitive-behavioural family intervention in reducing the burden of care in carers of patients with Alzheimer's disease

Background The majority of patients with Alzheimer's disease live outside institutions and there is considerable serious psychological morbidity among their carers.

Aims To evaluate whether family intervention reduces the subjective burden of care in carers of patients with Alzheimer's disease and produces clinical benefits in the patients.

Thu, 07/20/2017 - 15:20

Improving access to social care for adults with autism

This online guide looks at how social care services can improve access to adults with autism. It is based on research that explores the barriers to services experienced by people with autism. It covers people with autism, whether or not they also have a learning disability. The main sections of the guide cover: awareness raising; acceptability and accessibility; joint working; transitions; early intervention and prevention; personalising services; and carers. The guide suggests ways services can improve, identifying how best to meet the goals of the government's autism strategy.

Thu, 07/20/2017 - 15:19

Windows of opportunity: prevention and early intervention in dementia: a tool for commissioners and providers

Early intervention is often seen as anticipatory information and support delivered at the earliest stage of dementia, following diagnosis. Prevention encompasses the range of interventions that prevent an increase in need that may tip an individual into a higher or more intensive level of service. This online resource looks a persons journey through dementia and the opportunities for early intervention and prevention along the way.

Thu, 07/20/2017 - 15:14

Supporting carers to care in a crisis: an analysis of additional service provision essential to carers of people with learning disabilities

Research into how unpaid carers for people with learning disabilities cope with 'crisis' in their lives and the lives of those they care for was commissioned by Gwalia Housing in Wales. Twenty four carers who had experienced a crisis situation were interviewed. Although carers feedback found great variation in carers experience and definitions of crisis, the most frequent theme was that a crisis was something that stopped carers carrying out their duties.

Thu, 07/20/2017 - 15:13

Challenging behaviour and learning disabilities: prevention and interventions for people with learning disabilities whose behaviour challenges: NG11

This guideline covers interventions and support for children, young people and adults with a learning disability and behaviour that challenges. It highlights the importance of understanding the cause of behaviour that challenges, and performing thorough assessments so that steps can be taken to help people change their behaviour and improve their quality of life. The guideline also covers support and intervention for family members or carers.

Thu, 07/20/2017 - 15:11