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Chatter matters: advice on communication for carers

Colin Barnes describes how he sets about offering communication advice to family carers of people with dementia, and the materials he has developed to help carers understand the reasons for common difficulties and strategies for more successful communication

Thu, 07/20/2017 - 15:18

Final farewell

Looks at the support services that are available for people caring for terminally ill relatives and friends.

Thu, 07/20/2017 - 15:16

What carers of family members with mental illness say, think and do about their relative's smoking and the implications for health promotion and service delivery: a qualitative study

Few researchers have explored family carers’ perspectives of smoking by their family members with mental illness, despite smoking rates remaining high for people with mental illness. In-depth qualitative interviews with twelve South Australian family carers explored their experiences and views of providing care for people with mental illness who smoke. Data were analysed thematically. Around the central theme of the caring role within the context of mental illness and smoking, were three interrelated themes: (1) responsibility; (2) accommodation; and, (3) dissonance.

Thu, 07/20/2017 - 15:15

The views of relatives of young people with psychosis on how to design a Relatives Education And Coping Toolkit (REACT)

Background: Relatives of people with psychosis experience high levels of distress. Interventions are needed which can reduce distress and are widely available.

Aims: This study presents the views of relatives on how to design a supported self-management intervention for relatives.

Thu, 07/20/2017 - 15:15

Children and young people as active agents in care-giving: Agency and constraint

This paper envisions children and young people who provide informal care to family members with illness or disability as active agents within the care relationship, whilst emphasising that this agency operates within constraints. These constraints include familial and kinship obligations, socio-economic and demographic circumstances and policy and service constraints. This paper examines the costs incurred and benefits conferred by young people who provide care. It presents the findings from an analysis of Australian national data on young people who provide informal care.

Thu, 07/20/2017 - 15:15

Taking the job home

Looks at the issues facing both employers and social worker/carers. Caring for adults.

Thu, 07/20/2017 - 15:14

Growing older with learning disabilities: the GOLD programme

This paper provides an overview of the GOLD programme at the Foundation for People with Learning Disabilities. It describes the work of the 13 funded projects in a context of wider research concerning ageing and learning disabilities. Particular attention is given to those people living with older family carers and those living in residential services for older people. The picture is of services that offer little confidence for the future, as people with learning disabilities grow older.

Thu, 07/20/2017 - 15:14

Survey addresses improving support for family carers

Describes a project to investigate carers' views of support provided to them after admission of their relative to a dementia assessment ward, and the planning of a support package for relatives (Caring and Coping with Dementia).

Thu, 07/20/2017 - 15:14

Taking things one day at a time

Describes a support group where family carers new to the challenges of dementia can learn more without loosing their privacy. 'One Day at a Time' is a series of monthly talks run by the Dementia Development Team within social services in Kensington and Chelsea who want to develop their understanding and knowledge of dementia, without disclosing all in an emotional support group.

Thu, 07/20/2017 - 15:14

Carers' needs when relatives go into a care home

This article reviews literature on the experiences of family carers when a relative goes into long-term care, with the aim of informing nurses on providing support. Experiences before and after the care placement are explored. The study found nurses fail to recognise carers' expert knowledge and skills about their cared for relatives. Families perceive their loved one's values, beliefs and life history are ignored. Nurses need to challenge barriers to communication, and move away from paternalistic and ritualised care practice. 

Thu, 07/20/2017 - 15:14