You are here

  1. Home
  2. Surveys

Surveys

Does vigilance in decision-making matter for dementia family caregivers?

Objectives: Family responsibilities and social expectations often prompt conflict in caregivers' decision-making processes. Janis and Mann's (1977) conflict model describes vigilance as high-quality decision-making resulting in optimal outcomes.

Wed, 11/21/2018 - 16:11

Do nurses and other health professionals’ in elderly care have education in family nursing?

Background: Family caregivers are an important resource for providing care to elderly living at home. How nurses and other health professionals interact with family caregivers can have both a positive and a negative impact on the family caregivers’ situation. We lack knowledge of Norwegian nurses’ and other health professionals’ participation in educational programmes about family caregivers’ needs and situations.

Wed, 11/21/2018 - 11:12

Underestimated caregiver burden by cancer patients and its association with quality of life, depression and anxiety among caregivers

This study examined how patients with cancer estimate caregiver burden (CB) and the association between their underestimation of CB and their caregivers' self‐ratings of their quality of life (CQOLC‐K; Korean version of the Caregiver Quality of Life Index‐Cancer), depression and anxiety (Korean version of the Hospital Anxiety and Depression Scale). Participants consisted of 990 patient‐caregiver dyads recruited from a nationwide cross‐sectional survey conducted in South Korea. Medical baseline data were retrieved from the hospital information systems of the participating centres.

Tue, 11/20/2018 - 12:53

Changing Structures and Processes to Support Family Caregivers of Seriously Ill Patients

Background: Although family caregivers provide a significant portion of health and support services to adults with serious illness, they are often marginalized by existing healthcare systems and procedures. Objective: We examine the role of caregivers in existing systems of care, identify needed changes in structures and processes, and describe how these changes might be monitored and assessed and who should be accountable for implementing them.

Tue, 11/20/2018 - 11:28

Financial hardship after traumatic brain injury: a brief scale for family caregivers

Objective: Financial hardship is frequently posited as a significant factor influencing family health and adjustment after brain injury, though traditional methods of measurement have shown limited usefulness. The purpose of this study was to adapt and test the utility of a brief scale of financial hardship (BSFH-BI) for use with family caregivers after TBI. Methods: The researchers constructed the BSFH-BI using financial well-being items adapted from three survey instruments.

Mon, 11/19/2018 - 18:15

Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Disease—“Our life has changed forever”

While the experiences of family members supporting a person with a terminal illness are well documented, less is known about the needs of carers of people with neurological diseases, in particular, Motor Neurone Disease (MND). This paper describes the qualitative data from a large Australian survey of family carers of people with MND, to ascertain their experiences of receiving the diagnosis. The aim of the study was to describe the experiences of family carers of people with MND in receiving the diagnosis in order to inform and improve ways in which the diagnosis is communicated.

Fri, 11/16/2018 - 10:49

Falls and Hospitalizations Among Persons With Dementia and Associated Caregiver Emotional Difficulties

Background and Objectives: Falls and hospitalizations are adverse health events commonly experienced by persons with dementia (PWDs). These events often require urgent care from a family caregiver and may increase caregiver stress. We examine falls and hospitalizations among PWDs as predictors of caregivers' reported care-related emotional difficulty, in addition to care-related stressors. Research Design and Methods: Cross-sectional telephone survey of 652 informal caregivers for PWDs.

Wed, 10/24/2018 - 11:09

The complex relationship between household income of family caregivers, access to palliative care services and place of death: A national household population survey

Background: Previous work shows that more affluent patients with cancer are more likely to die at home, whereas those dying from non-cancer conditions are more likely to die in hospital. Family caregivers are an important factor in determining place of death. Aim: To investigate associations between family caregivers' household income, patients' access to specialist palliative care and place of patients' death, by level of personal end-of-life care. Design: A cross-sectional community household population survey.

Mon, 10/22/2018 - 13:43

Who is responsible for providing care? Investigating the role of care tasks and past experiences in a cross-sectional survey in the Netherlands

Background: Many countries face substitution from formal to informal care. It is essential that a sufficient number of caregivers, such as family, friends or neighbors, are willing and able to lend care to address the needs of ill or elderly persons.

Fri, 10/19/2018 - 15:55

Physician Behavior toward Death Pronouncement in Palliative Care Units

Background: There are few studies on bereaved caregiver's perceptions of physician behavior toward death pronouncement. Although previous research indicates that most caregivers are satisfied with physician behavior toward death pronouncement at home hospices, bereaved caregiver's perceptions of death pronouncement in palliative care units (PCUs) have not been investigated. Objective: The aim was to examine bereaved caregiver's perceptions of physician behavior toward death pronouncement in PCUs.

Fri, 10/19/2018 - 15:20