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Surveys

Barriers and supports for exercise participation among adults with Down Syndrome

Examined were the impact of exercise barriers and carer attitudes regarding exercise outcomes on the exercise participation of adults with Down syndrome (DS). The sample included 44 adults age 30 years and older with DS and mild to moderate intellectual disability and their carers (family members or staff). Measures included personal characteristics of the adults with DS (age, level of adaptive behavior, and health status), carer perceived outcomes of exercise for people with DS, socio-emotional barriers, and access barriers to exercising.

Thu, 07/20/2017 - 15:10

End-of-Life Care in Italian Hospitals: Quality of and Satisfaction With Care From the Caregivers' Point of View—Results from the Italian Survey of the Dying of Cancer

Context: A number of studies have highlighted the poor quality of end-of-life (EOL) care provided in hospital settings, leading to a reduction in the quality of EOL care and increase in patient and caregiver dissatisfaction levels.

Objectives: The aims of this study were the evaluation of the prevalence of major symptoms, treatment, outcomes, information, and care provided to dying cancer patients in Italian hospitals; and an analysis of clinical and socio-demographic factors associated with caregiver satisfaction with the health care provided.

Thu, 07/20/2017 - 15:10

Young Carers in the UK

Discusses the "Young Carers in the UK: The 2004 Report" which focuses on the third national survey of young carers in Great Britain. Data collection for the survey; Information on people with care needs; Range of caring tasks young people perform; Percentage of young carers providing different tasks; Impact of caring tasks on educational experiences of carers; Percentage of young carers assessed under the Children Act.

Thu, 07/20/2017 - 15:10

Do patients really want copies of their GP letters? A questionnaire survey of older adults and their carers

AIMS AND METHOD The National Health Service Plan stated that all correspondence between clinicians would be copied to patients by April 2004. We wanted to find out whether this practice reflected the true desires of their patients. A questionnaire survey was therefore performed in older adults and their carers attending a psychiatric out-patient clinic.

Thu, 07/20/2017 - 15:09

Estimating the prevalence of unpaid adult care over time

To help fulfil their responsibilities towards unpaid carers, service providers need some idea of the carer's situation and how many might require support. This paper argues that estimating the prevalence of unpaid care across service planning and budgeting cycles provides a better indication of the size and composition of the carer population than estimates at a point in time. The article presents prevalence rates of unpaid adult care from the British Household Panel Survey.

Thu, 07/20/2017 - 15:09

Care Direct: an intergrated route to help for older people

Reports on an evaluation of Care Direct, a service launched by the Department of Health piloted in six areas offering information and support to people over 60 and their carers principally through a telephone help-line service. A survey of 600 callers was carried out during 2002. The analysis focuses on the characteristics of users and callers experience of using the service. Concludes that the experience of the first year has been positive, with the service meeting its targets in terms of range and volume of activity, and achieving satisfaction with callers.

Thu, 07/20/2017 - 15:09

Life with Parkinson's today - room for improvement: results of the UK's largest ever survey of people with Parkinson's and carers

Results of the UK’s largest ever survey of people with Parkinson’s and carers

Thu, 07/20/2017 - 15:09

Happy and excited despite heavy caring commitment

This article focuses on a 2007 survey by "Community Care" which found that almost half of young carers will spend a number of hours caring for another member of their family on Christmas Day. Forty-six per cent of young carers have not talked to a social worker in the last year about the support they need, according to the survey of 109 young carers aged eight-16 in Great Britain. The survey also revealed reluctance among young carers to want more professional support.

Thu, 07/20/2017 - 15:09

How can we improve support for carers?

Seeks views on a new strategy for carers that will set out how more can be done to support them:

Thu, 07/20/2017 - 15:09