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User participation

Service user and carer involvement in mental health education, training and research - a literature review

As part of an evaluation of service users’ and carers’ experience of involvement in mental health education, training and research, an extended literature review was undertaken. The purpose of this was to review policy underpinning service user and carer involvement in those areas, identify the extent and range of involvement, the processes involved, and the extent to which the effectiveness and impact of involvement had been evaluated. The review found that there was a range of different ways in which people were involved.

Thu, 07/20/2017 - 15:20

A comparison of carers needs for service users cared for both in and out of area

Purpose – This paper describes an ongoing process of engagement with carers of people with intellectual disabilities currently being monitored by an out of area service for both carers of people placed both in area and out of area within a local Mental Health Learning Disabilities team in South London.

Thu, 07/20/2017 - 15:19

SCIE research briefing 12: involving individual older patients and their carers in the discharge process from acute to community care: implications for intermediate care

This web-based briefing provides a concise summary of the research and policy literature into the means, benefits and difficulties of involving patients in the planning of discharge to community or intermediate care. It also considers the role of carers in this process, as well as what happens when an older person’s ability to communicate their preferences in these matters is affected by dementia, language difficulties, or an unwillingness or reluctance to express preferences about the provision of care.

Thu, 07/20/2017 - 15:19

Bite-size guides to patient and public participation: guide 2: governance for participation

This guide sets out key principles to ensure that patient, carer and public voices are included in governance frameworks for commissioning and service development in the NHS and health care services. It also includes practical steps to put these principles in place and contains links to supporting material. The guide is based on a review of research, best practice reports and the views of stakeholders. It aims to support clinical commissioning groups and others to plan and deliver good patient and public participation. One of four guides developed by NHS England with their partners.

Thu, 07/20/2017 - 15:19

Evaluating and quantifying user and carer involvement in mental health care planning (EQUIP) : co-development of a new patient-reported outcome measure

International and national health policy seeks to increase service user and carer involvement in mental health care planning, but suitable user-centred tools to assess the success of these initiatives are not yet available. The current study describes the development of a new reliable and valid, interval-scaled service-user and carer reported outcome measure for quantifying user/carer involvement in mental health care planning. Psychometric development reduced a 70-item item bank to a short form questionnaire using a combination of Classical Test, Mokken and Rasch Analyses.

Thu, 07/20/2017 - 15:19

Experiences of service user and carer participation in health care education

The agenda of involving service users and their carers more meaningfully in the development, delivery and evaluation of professional education in health is gaining in importance. The paper reports on a symposium3which presented three diverse initiatives, established within a school of nursing and midwifery in the United Kingdom. These represent different approaches and attempts to engage service users and in some instances carers more fully in professional education aimed at developing mental health practitioners.

Thu, 07/20/2017 - 15:19

Making it clear and relevant: patients and carers add value to studies through research document reviews

Purpose – The National Institute of Health Research MHRN established the Feasibility and Support to Timely recruitment for Research (FAST-R) service in 2011, to provide rapid patient and carer feedback on research documents, prior to ethical review. The aims were to improve the feasibility of studies, to speed up regulatory processes and enhance study set up and completion. The purpose of this paper is to explore whether and how the FAST-R service benefits the review process.

Thu, 07/20/2017 - 15:19

Cultural adaptation of mental health measures: improving the quality of clinical practice and research

The need for accurate information about the mental health problems of multicultural communities requires valid measures of mental health for use in a number of languages and cultural contexts. Measures of psychopathological symptoms leading to a diagnosis have been especially criticised for their universal application, without attention to their limitations across cultures. Yet, measures are crucial to assess recovery and the performance of services, and to take account of carer and user views.

Thu, 07/20/2017 - 15:19

Effective engagement in social work education

This good practice guide is based on research conducted in 2008, and commissioned to explore the extent of service user and carer involvement in the Higher and Further Education sectors in west and southeast Scotland. Through this guide it is hoped that good practice can be shared and lessons learned. This guide is a tool to support the effective engagement of people who use services and carers in social work education. It is evidence-based and applicable to educators working in the social care field and beyond including health, early years and childcare.

Thu, 07/20/2017 - 15:18

In our own words

Looks at what user consultation and empowerment mean to service users and carers themselves.

Thu, 07/20/2017 - 15:18