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User participation

Involving service users and carers in psychiatric education: what do trainees think?

In 2004 the Royal College of Psychiatrists made it clear that it was committed to increasing the involvement of service users and carers throughout psychiatric education. This has been mandatory since June 2005 and it has been a compulsory aspect of psychiatric training for schemes to demonstrate a meaningful involvement of users and carers in the training of psychiatrists.

Thu, 07/20/2017 - 15:14

Principles of participation

The video explores how service user and carer participation has become an increasingly important part of how adult social care services are developed and delivered. The video uses the example of how Manchester adult social care services are involving service users and carers. The film highlights the jigsaw model of participation, this connects four aspects of participation: Culture, Structure, Practice and Review. For further details about the jigsaw model see SCIE Guide 17. Participation operates at many different levels, from individual care packages to service design and commissioning.

Thu, 07/20/2017 - 15:13

Working with carers in educational settings: developing innovations in practice

Purpose – It is generally agreed that carers in mental health care play a vital role in helping people to maintain their place in the community and reducing the time clients spend in hospital or residential settings. The purpose of this paper is to develop a conceptual approach to involving carers in higher education by acknowledging their contribution to improving practice and identify the impact upon student learning in mental health and social care professions. 

Thu, 07/20/2017 - 15:13

The impact of the carers movement

Baroness [Jill] Pitkeathley traces the development of the carers movement in the UK and assesses its impact. She concludes that it has been of vital significance in formulating and driving policy in health and social care. Its work is far from over though and a strong voice for carers will continue to be important in the future especially in view of our aging population and the pressure on health and social care budgets.

Thu, 07/20/2017 - 15:13

Social work education case study: Anglia Ruskin University

Service users, carers and academics describe participation in the social work degree at Anglia Ruskin University. It looks at the different ways that users and carers are involved in the course, the importance of the university providing appropriate training and support, the benefits students get from contact with users and carers and what users and carers gain from the experience. The film will be of interest to social work educators, social work students, service users and carers.

Thu, 07/20/2017 - 15:13

Up close and personal: a qualitative study exploring the lived experience of older carers

This study explored the experiences of informal carers who were aged 65 years and over. It has been estimated that 15 per cent of those aged 65 or over provide some form of informal care in England. Despite a growing literature on the involvement of older people in research, there is a paucity of literature on the involvement of older carers. In this study, older carers were identified via a General Practice (GP) register in one urban medical practice. Data was collected through a series of focus groups, which were transcribed and analysed using thematic analysis.

Thu, 07/20/2017 - 15:13

Social work education case study: Leeds University

Service users, carers and academics describe participation in the social work degree at Leeds University. It looks at the different ways that users and carers are involved in the course, including teaching, role-playing activities, marking students' work and the selection process for students applying to on the course. It also looks at the importance of the university providing appropriate training and support, the benefits students get from contact with users and carers and what users and carers gain from the experience.

Thu, 07/20/2017 - 15:13

Plan with care

Research has been undertaken to look at how well social care and health organisations involve adult carers in service planning and delivery. This article concludes that while some carers are involved at a strategic level, carers are most dissatisfied about their involvement in individual assessment processes and outcomes. [Abstract]

Thu, 07/20/2017 - 15:13

Breaking the mould: developing a new service for people with dementia and their carers

Respite care or ‘short breaks’ are currently heavily promoted as services to support older people and their carers. However, uptake of such services can be limited and there is a need to design models which are more flexible and responsive, and also reflect the ethos of personcentred care, which is currently one of the main drivers of health and social care policy in the UK. This paper describes the rationale for, and the philosophy behind, a new service for people with dementia and their carers recently established in Sheffield which provides respite care in the person's own home.

Thu, 07/20/2017 - 15:13