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Always on call, always concerned: a survey of the experiences of older carers

Of the UK‟s approximately six million carers, around half are aged over 50. A recent survey of carers in England showed that people near or over retirement age undertake a high proportion of caring.

Thu, 07/20/2017 - 15:17

Informal caregivers' experiences of formal support in a changing context

As the location of long-term care of elderly people moves to homes and communities, and responsibility for care shifts to families, understanding the experience of people in this situation is necessary to ensure that support is appropriate, accessible and effective. The present paper explores informal caregivers’ and recipients’ relationships with formal support, drawing on thematic and narrative analysis of 30 in-depth interviews with self-identified family caregivers conducted over a year in a mid-size city in Ontario, Canada.

Thu, 07/20/2017 - 15:16

Carers' perceptions of community occupational therapy: short report

This paper reports on the experience of informal carers whose family members have received occupational therapy. The qualitative study focused on one city. Semi-structured interviews were carried out with six carers and the interviews were analysed using thematic analysis. The carers were generally satisfied with the occupational therapy that the care recipient received. The carers felt involved in the occupational therapy, although some had a lengthy wait for this.

Thu, 07/20/2017 - 15:16

Care and support for older people and carers in Bradford : their perspectives, aspirations and experiences

This study explored the needs, aspirations and expectations of older people and family carers from a range of ethnic communities in Bradford, regarding both formal paid care provision and help from family, friends and neighbours. The focus was on the accessibility, acceptability, appropriateness and responsiveness of services. The study found cross-cultural similarities as well as cultural specificities in experiences and expectations. 

Thu, 07/20/2017 - 15:16

The views of relatives of young people with psychosis on how to design a Relatives Education And Coping Toolkit (REACT)

Background: Relatives of people with psychosis experience high levels of distress. Interventions are needed which can reduce distress and are widely available.

Aims: This study presents the views of relatives on how to design a supported self-management intervention for relatives.

Thu, 07/20/2017 - 15:15

Age old attitudes? Planning for retirement, means-testing, inheritance and informal care

An investigation of people's attitudes, understanding and expectations of their individual or collective rights and responsibilities in old age.

Thu, 07/20/2017 - 15:15

It's everybody's business: care and support for the 21st century

The Right Care, Right Deal coalition combines three of the UK's largest charities working with older people, their families and carers (Counsel and Care, Carers UK and Help the Aged) to urge the Government to renew its vision for the future of social care in England. (See Related Link for the consultation document: The case for change: why England needs a new care and support system, 2008). This campaign document outlines the main issues needed to be tackled in order for there to be 'a new, personalised and better funded deal for social care, fit for the 21st Century'.

Thu, 07/20/2017 - 15:15

Support groups for dementia caregivers Predictors for utilisation and expected quality from a family caregiver's point of view: A questionnaire survey PART I

Background: Support groups have proved to be effective in reducing the burden on family caregivers of dementia patients. Nevertheless, little is known about the factors that influence utilisation or quality expectations of family caregivers. These questions are addressed in the following paper.

Methods: The cross-sectional study was carried out as an anonymous written survey of family caregivers of dementia patients in Germany. Qualitative and quantitative data from 404 caregivers were analysed using content analysis and binary logistic regression analysis.

Thu, 07/20/2017 - 15:14

My mum, my dad, my daughter and the NHS

Talking from her own personal experiences, the author puts forward her view on what carers want from the NHS. 

Thu, 07/20/2017 - 15:13

The drama of end of life care at home

BACKGROUND: Many terminally ill patients want to die at home. Family carers are fundamental to achieving this, but often feel anxious and unprepared for the role. Supporting them is vital in palliative care.

AIM: To explore the experiences of carers of patients dying at home, in particular their expectations and preparedness for the dying process.

METHOD: The study followed a qualitative approach. In-depth, semi-structured interviews with 15 carers were carried out.

Thu, 07/20/2017 - 15:13