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Trends in the provision of residential educational placements available for young people with learning disabilities/autism in England

Purpose: Little is known about the characteristics of residential educational settings for young people with intellectual or developmental disabilities (IDD) in England. Previous research has focussed on the characteristics and experiences of the young people attending such settings rather than the setting itself; therefore, an overview of national provision is needed. The paper aims to discuss these issues.

Tue, 12/20/2022 - 13:06

Faith-sensitive end of life care for children, young people and their families

This article is part of an at a glance series on palliation and end of life care in paediatrics and focuses on the provision of faith-sensitive end of life care. Particular religions are discussed, with some key points for care of patients from some of the most prevalent religions within the UK. This article is intended to give points for discussion and consideration, but health professionals are encouraged to speak to every patient and family on an individual level to ensure an understanding of their personal beliefs.

Sun, 05/15/2022 - 17:35

Guidance for those under 25 who provide care for someone

This guidance is for anyone under 25 who cares for a family member who cannot cope without their support. This may be because they have a lifelong condition, illness, disability, serious injury, a mental health condition or an addiction. 

Thu, 11/19/2020 - 11:47

Young caregivers in the end-of-life setting: a population-based profile of an emerging group

Purpose: Little is known about young caregivers of people with advanced life-limiting illness. Better understanding of the needs and characteristics of these young caregivers can inform development of palliative care and other support services.

Thu, 07/20/2017 - 15:23

'The biggest worry is what she's missing out on'

Community Care's exclusive survey of young carers shows that half will spend more than five hours caring for another member of the family this Christmas. The authors talks to one young carer about her plans for the Christmas holidays. 

Thu, 07/20/2017 - 15:23

Challenging behaviour: a guide for family carers on getting the right support for teenagers

This briefing paper provides information for family carers who are supporting a teenager or young adult with severe learning disabilities and behaviour described as challenging, who is approaching transition to adult services. It aims to help carers understand what expect from local services, to help identify what 'good' services look like, to help them ask for the support they and their family need and to help them work in partnership with the professionals.

Thu, 07/20/2017 - 15:22

Youth adjustment to parental illness or disability: The role of illness characteristics, caregiving, and attachment

This study aimed to (1) examine relations between youth adjustment and three sets of predictors: parental illness/disability characteristics, caregiving, and parent–child attachment, and (2) explore differences on these variables between youths of parental physical illness/disability and youths of parental mental illness.

Thu, 07/20/2017 - 15:21

Reality check: a participation toolkit for adults working with young people leaving care

Based on young people's own accounts, this DVD and toolkit gives care workers a valuable opportunity to reflect on and improve practice.

Thu, 07/20/2017 - 15:20

Health of young and elderly informal carers : analysis of UK census data

Concern has been mounting about the health and welfare of people who provide informal care for family or friends with chronic illness. In particular, young and elderly people - vulnerable groups in their own right - may be carrying a heavy burden. The extent of the problem is not well known because estimates have been pieced together from ad hoc local studies and household sample surveys. These estimated that young carers in the United Kingdom numbered between 10,000 and 50,000, and that about one in 20 older people in Great Britain spent long hours caring for sick family members.

Thu, 07/20/2017 - 15:19

Engage toolkit: supporting black and minority ethnic family carers

This resource aims to provide practitioners working with children and families affected by ill health and disability with information, resources and links to help develop and implement best policy and practice for services to identify and support black and minority ethnic young carers and their families.

This site was originally funded by the Department of Health in order to provide an understanding of the needs of black and minority ethnic family carers and best practice support.

Thu, 07/20/2017 - 15:18

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