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Young carers in the UK: the 2004 report

This is the report of the third national survey of young carers who are being supported by specialist young carers projects across the UK. Throughout the report, where appropriate and for comparison, we refer to the two previous surveys conducted in 1995 and 1997 (Dearden and Becker, 1995, 1998). The 2004 Report is based on data collected from 87 projects concerning a total of 6,178 young carers – the largest survey of its kind. 

Thu, 07/20/2017 - 15:18

Caring about carers: only half the picture

This article examines the government's strategy for carers and considers its significance for people in informal caring relationships. It argues that although it contains important and innovative measures, the strategy does not address adequately the complex nature of caring relationships nor does it take account of the perspectives of people who receive care. There is a danger, therefore, that the strategy will be divisive. However, the recognition that caring is a widespread activity is welcomed.

Thu, 07/20/2017 - 15:17

The 24-7-52 job: family caregiving for young adults with serious and persistent mental illness

Few of the studies focusing on family caregiving have dealt with families caring for a young adult member with a serious and persistent mental illness. This qualitative study expands our understanding of the caregiving processes in these families. The narrative responses of 76 family caregivers from National Alliance for the Mentally Ill chapters across the United States were analysed using content analysis. Five caregiving processes were identified including monitoring, managing the illness, maintaining the home, supporting/encouraging, and socialising.

Thu, 07/20/2017 - 15:16

Children who care for parents with mental health problems

A significant number of children and young people are caring for a parent or parents with mental health problems defined as serious or severe, and enduring. Children and young people with these responsibilities are often referred to as young carers. It is important that they are recognised as children and young people in the first instance, then as carers. And what helps these young people most is the support that is provided to their parents. 

Thu, 07/20/2017 - 15:15

How the lives of young carers differ from those of young non-carers and how their efforts sometimes go unsupported

The author highlights the plight of young carers whose support needs are often overlooked and whose hard work is seldom recognised. Cites four references.

Thu, 07/20/2017 - 15:15

An adult education: Learning and understanding what young service users and carers really, really want in terms of their mental well being

For the past decade nurse education has incorporated service user and carer perspectives into their programme and research agendas. Moving from rhetoric to the reality of embedding adult service user and carer knowledge into nurse education this paper discusses how this good practice was extended to young people under the age of 18. Globally, the mental health of young people is coming under the spotlight and based on this two “World Café” events focusing on young people and their mental well being were organised.

Thu, 07/20/2017 - 15:15

Children and young people as active agents in care-giving: Agency and constraint

This paper envisions children and young people who provide informal care to family members with illness or disability as active agents within the care relationship, whilst emphasising that this agency operates within constraints. These constraints include familial and kinship obligations, socio-economic and demographic circumstances and policy and service constraints. This paper examines the costs incurred and benefits conferred by young people who provide care. It presents the findings from an analysis of Australian national data on young people who provide informal care.

Thu, 07/20/2017 - 15:15

Young carers' transitions into adulthood

This research looks at the experiences of 60 young people caring for an ill or disabled parent. It examines how young carers' move into adulthood and how their caring responsibilities affect this.

Thu, 07/20/2017 - 15:15

Youth South Asians with learning disabilities: still socially excluded?

This paper report on a study undertaken in Glasgow of young South Asian people with learning disabilities and their carers, and explores the extent to which they are socially excluded. Although there is an increasing political emphasis on the inclusion of people with learning disabilities, the families concerned continue to experience isolation, both socially and in terms of service provision. Access to service is often problematic, because of linguistic and cultural barriers and families appear to be reluctant to use day centres.

Thu, 07/20/2017 - 15:14

Young adult carers in the UK: experiences, needs and services for carers aged 16-24

This study, funded by The True Colours Trust in association with The Princess Royal Trust for Carers, investigates the experiences, needs and service responses to the 290,000 young adult carers aged 16-24 in the UK today.

Thu, 07/20/2017 - 15:13