English

Daughter caregivers of elders with dementia become their parents' advocates over time. This role takes on even greater importance when one or both parents are placed in a long-term care facility. This article presents the results of a qualitative study aimed at explaining how this advocacy role evolves following institutionalisation. In-depth interviews were conducted with daughters (N = 14) of an institutionalised parent with dementia and selected using a theoretical sampling procedure.

This briefing presents the findings of a survey that sought to find out more about how different local authorities collect and use information about their local carer populations: the range of information sources they use to form an evidence base on carers; how they use evidence to understand local need; and how evidence influences their planning and delivery of local carer support.

Young carers are children and young people who look after a family member with illness, disability or mental health or substance misuse problems. Often the relative is not getting the support needed from statutory services. Of an estimated 175,000 young carers, 13,000, including 3,500 at primary school, provide more than 50 hours a week. Asks why they are hidden and discusses the failing education and adults’ services. Most adult carers, let alone young carers, are  unaware of their rights.

There are many different organisations working with and supporting carers. This guide can be used by a wide range of professionals in different ways. Whilst the case studies provide examples of the partnership work promoted by Carers Centres, the methodologies given can be used in other partnership work across carers’ services, as well as within health and social work services.

There are few published reports of night-time respite care for people with dementia. The authors review the literature on effectiveness of respite care and report on an audit of the Bexley ACE Night Centre. Night-time respite care is well received by carers who say that it helps them cope better and for longer with relatives who have dementia. Many carers say they would be willing to pay for the service if it were not free. They argue that models of very brief night-time respite should be developed further and researched more fully as they meet an important need of carers. 

Caring for people with dementia is complex and demanding, and informal carers carry out much of the care. In this article, Madeline Armstrong outlines the different types of dementia and discusses the psychological approaches to care. Informal carers experience many stressors when caring for people with dementia and Admiral nurses play an important role in supporting carers.

Literature on responsibility of adult children for aging parents reflects lack of conceptual clarity. The authors examined filial concepts across five cultural groups: African-, Asian-, Euro-, Latino-, and Native Americans. Data were randomly divided for scale development (n = 285) and cross-validation (n = 284). Exploratory factor analysis on 59 items identified three filial concepts: Responsibility, Respect, and Care.

Norman Lamb, Minister of State for Care and Support, writes about the contribution of carers and new funding for projects to support carers. [DH website abstract].

Background Needs for care in service users with schizophrenia are often defined by professionals and focus on basic needs for health and social care rather than broader existential issues.

Aims To examine the perceptions of users and formal and informal carers of the needs of people with non-affective psychosis.

Method A qualitative study was conducted involving focus groups of service users and informal and formal carers in a major Brazilian city.

This report is based on findings from a large national survey of carers’ views carried out between November 2002 and February 2003. Under Pressure focuses on two principle questions: how has the mechanism introduced to provide carers with a gateway to statutory support, the carers’ assessment, been received?; and what helps carers to support their own health and well being?