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Who cares? Information and support for the carers of people with dementia

This booklet for carers gives information about dementia, caring for someone with dementia and the help available to carers. Original edition researched and written by Maggie Jee and Liz Reason.  This edition has been developed with the valuable assistance of Help the Aged, Age Concern (England), the Alzheimer's Society, The Princess Royal Trust for Carers, Dementia Voice and the South London and Maudsley NHS Trust. Please note that there may be changes in the benefits system and in social services after publication of this booklet, so you are advised to check benefits and services issues w

Thu, 07/20/2017 - 15:11

Choice literature review: a review of the literature and consultation on choice and decision-making for users and carers of mental health and social care services

This literature review on choice in mental health was commissioned by the Department of Health in July 2005 and submitted to the Department in January 2006. The main part of the review looked at the English language literature on choice in mental health over the past five years. It aimed to identify in particular what tools there are to help people make meaningful choices; what media are effective in facilitating decision-making; and to what extent methods such as advance directives might be used.

Thu, 07/20/2017 - 15:11

Carer burden in schizophrenia: considerations for nursing practice

In the UK, half a million people care for people with severe mental illnesses (Princess Royal Trust for Carers 2002). This article reviews the findings of a study of the views of 13 carers of people self-identified as having schizophrenia on the nature and extent of their role, and its effect on their lives and identities. According to these findings, carers experience stress and illness, and think that the support they receive from professionals is inadequate. As a result, they think that help and psychotherapeutic interventions, such as family therapy, should be more accessible. 

Thu, 07/20/2017 - 15:11

In their own right : the Carers Act and carers of people with learning disabilities

This book reports on the first research study to reflect the experiences of carers of people with learning disabilities following the implementation of the 1995 Carers Act.

Thu, 07/20/2017 - 15:11

UK study of abuse and neglect of older people: qualitative findings

This study was carried out by the National Centre for Social Research and King’s College London and commissioned and co-funded by Comic Relief and the Department of Health. It presents findings of in-depth interviews with a selection of older people who have experienced abuse and mistreatment.

Thu, 07/20/2017 - 15:11

Longitudinal perspectives on caregiving, employment history and marital status in midlife in England and Wales

In this paper, we examine associations between employment history and marital status and unpaid care provision among those aged 40–59 in England and Wales. We used data from a large nationally representative longitudinal study, the Office for National Statistics Longitudinal Study. Initially based on a sample drawn from the 1971 Census, in 2001 this study included data on 110 464 people aged 40–59 of whom 5% provided 20 or more hours per week of unpaid care.

Thu, 07/20/2017 - 15:11

Effectiveness of case management among older adults with early symptoms of dementia and their primary informal caregivers: a randomized clinical trial

Background: It is believed that timely recognition and diagnosis of dementia is a pre-condition for improving care for both older adults with dementia and their informal caregivers. However, diagnosing dementia often occurs late in the disease. This means that a significant number of patients with early symptoms of dementia and their informal caregivers may lack appropriate care.

Objectives: To compare the effects of case management and usual care among community-dwelling older adults with early symptoms of dementia and their primary informal caregivers.

Thu, 07/20/2017 - 15:11

Addressing the needs of caregivers of cancer patients in general practice: a complex intervention

Background This study aimed to develop an innovation to assist general practitioners (GPs) in Australia to proactively address the needs of caregivers of people with cancer. Method Six GPs were video recorded each consulting six actor-patients in their respective practices. All cases depicted caregivers of people with cancer. The patients were instructed to complete a Needs Assessment Tool for Caregivers (NAT-C), before the consultation. Actor-patients were instructed to present the NAT-C to three of the six GPs they consulted, selected at random.

Thu, 07/20/2017 - 15:11

The effect of caregiver support interventions for informal caregivers of community-dwelling frail elderly : a systematic review

INTRODUCTION: Informal caregivers are important resources for community-dwelling frail elderly. But caring can be challenging. To be able to provide long-term care to the elderly, informal caregivers need to be supported as well. The aim of this study is to review the current best evidence on the effectiveness of different types of support services targeting informal caregivers of community-dwelling frail elderly.

Thu, 07/20/2017 - 15:11