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Child characteristics, caregiver characteristics, and environmental factors affecting the quality of life of caregivers of children with cerebral palsy

Purpose: The study aimed to investigate comprehensively the determinants of the quality of life (QOL) of caregivers of children with cerebral palsy (CP) based on the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY).

Tue, 12/20/2022 - 12:35

Shifting Priorities for the Survival of My Child: Managing Expenses, Increasing Debt, and Tapping Into Available Resources to Maintain the Financial Stability of the Family

Background: Parents are confronted with a range of direct costs and intense caregiving demands following their child's cancer diagnosis, which may potentially threaten the financial stability of the family. Objective The aims of this study were to explore the financial impact of a new childhood cancer diagnosis on families and understand the strategies families use to manage these financial impacts.

Tue, 12/20/2022 - 12:31

Reliability and validity of a Japanese version of the psychosocial assessment tool for families of children with cancer

Background: Patients with childhood cancer and their families frequently experience psychosocial distress associated with cancer and its treatment. We thus examined the reliability and validity of a Japanese version of the Psychosocial Assessment Tool, which was designed to screen for psychosocial risk factors among families of children with cancer.

Tue, 12/20/2022 - 12:27

Working with Siblings of Children with Autism: A Solution-focused Approach

The literature on how autism spectrum disorders ( ASD) impact the family unit primarily focuses on the negative experiences of parents and neurotypical ( NT) siblings. This unintentional focus may impact the therapist's ability to identify strengths within the family unit and further perpetuate the misconception that ASD is only a 'problem.' This paper reviews NT siblings' experiences of living with an ASD sibling. A solution-focused brief therapy framework is used in order to alter the covert message that an ASD diagnosis is a 'problem' for the families.

Tue, 12/20/2022 - 12:24

Leveraging Academic-Community Partnerships to Engage Families of Children with Autism Spectrum Disorder in Research

It is important to engage children with ASD and the families that support them in research. However, it is often challenging for researchers to engage this population in time- and/or labor-intensive research due to the many barriers caregivers of children with ASD face. From a researcher's perspective, this challenge ultimately inhibits research designs and compromises the learning and understanding needed to identify meaningful research questions, solve relevant problems, and implement solutions into practice.

Tue, 12/20/2022 - 12:21

Improving the Readability of Pediatric Hospital Medicine Discharge Instructions

Background: Readable discharge instructions may help caregivers understand and implement care plans following hospitalization. Many caregivers of hospitalized children, however, have limited literacy. We aimed to increase the percentage of discharge instructions written at 7th grade level or lower for hospital medicine patients from 13% to 80% in 6 months.

Tue, 12/20/2022 - 12:18

Side effects of chemotherapy in children with cancer: effects of nursing training administered to caregivers

Objective: The present study aimed to assess the consequences of providing nursing training to caregivers of children with cancer on the side effects associated with chemotherapy.

Design: The present study used a pre-test-post-test experimental design. Setting The study was conducted in a paediatric hematological oncology hospital in Ankara, Turkey

Tue, 12/20/2022 - 12:14

Burden of caregivers of children with cerebral palsy: an intersectional analysis of gender, poverty, stigma, and public policy

Background: Caregivers of children with cerebral palsy suffer from a substantial psychosocial burden. However, there is a scarcity of documentation of the various sources of burden in low- and middle-income settings. 

Tue, 12/20/2022 - 12:05

Factors influencing nurse-to-parent communication in culturally sensitive pediatric care: a qualitative study

Background: To deliver quality healthcare to diverse patients, effective commmunication is key. Little evidence exists about what factors influence nurse-to-parent communication in culturally sensitive pediatric care. Objective: The aim of this study was to explore factors that influence nurse-to-parent communication in the provision of culturally sensitive pediatric care. Design: This study employed a qualitative content analysis.

Tue, 12/20/2022 - 11:58

The effect of the Hambisela programme on stress levels and quality of life of primary caregivers of children with cerebral palsy: A pilot study

Background: Caregivers of children with cerebral palsy (CP) are at risk of having high stress levels and poor quality of life (QOL) which could have a detrimental effect on themselves and their children. Taking caregivers' well-being into consideration is therefore important when providing rehabilitation to children with CP. Interventions to mediate primary caregiver stress and QOL using an educational tool have not been tested in this population in South Africa.

Tue, 12/20/2022 - 11:55

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