English

Although stigma related to developmental disorders (DD) has been associated with poor mental health among caregivers, an in-depth understanding of factors that influence internalisation of stigma by caregivers is missing. The aim of our study was to explore perceptions and experiences of stigma among parents of children with DD in Ethiopia and examine the contributing and protective factors for internalised stigma based on the perspectives of the parents themselves.

Background: In Ethiopia, stigmatising attitudes towards people living with HIV have reduced over time. This is mainly due to improved HIV knowledge and the expansion of access to HIV care and support services. However, HIV stigma and discrimination remain a key challenge and have negative impacts on access to and utilisation of HIV services including nutritional programs in the HIV care setting. A small number of studies have examined the experience of stigma related to nutritional programs, but this is limited.

This research is a qualitative study of the spiritual needs and practice of chronically ill children and their families in the Isan region of Thailand. The purposive sampling was 17 chronically ill children aged 10–18 years old and primary caregivers. Three instruments were used: a questionnaire, in-depth interview with questions adapted from the Spiritual Assessment Scale (SAS) by O'Brien, and non-participant observation. Field note-taking and voice recordings were used for data recording. Triangulation was used before analysis to test for credibility.

Background: To design high-quality home-based hospice and palliative care (HBHPC) systems, it is imperative to understand the perspectives of parents whose children enroll in HBHPC programs.

An abstract of a study by Thienprayoon et al understanding the long-term implications and decision-making complexities surrounding tracheostomy placement and permanent mechanical ventilation, including caregiver burden of tracheostomy care and potential for limited community resources is presented. The decision to place a tracheostomy tube in a child who will be ventilator-dependent for the duration of her life is complex.

Background: The influence of parental psychopathology and parental expectations on child well-being is well documented among typically developing populations. However, to date little research has examined the relationship among these factors in families of children with autism spectrum disorder (ASD).

Purpose: to know the family interaction with the hearing impaired child/adolescent.

The Women's and Children's Health Network (WCHN), South Australia (SA), became a designated Best Practice Spotlight Organisation (BPSO) site in 2019 following a three year candidature, through the Registered Nurses Association of Ontario (RNAO) with host organisation, the Australian Nursing and Midwifery Federation (ANMF) SA Branch.

Purpose: This study investigated two of the stresses experienced by parents caring for offspring with Angelman syndrome (AS) and Prader-Willi syndrome (PWS) in Western Australia, and identified their coping strategies.

Background: Preparing families of children requiring long-term mechanical ventilation (LTMV) to manage medical emergencies at home is challenging. Opportunities for family caregivers to rehearse crisis management in a controlled setting before discharge are limited.