You are here

  1. Home
  2. English

English

Understanding the experiences and needs of people with dementia and sight loss

It would surprise many people to know that sight loss may be more common in people with dementia; the effect of these two conditions on people's lives had never previously been investigated until recently. Here, Vanessa Lawrence and Joanna Murray present the findings of their ground‐breaking research carried out with Professor Sube Banerjee and Dr Dominic Ffytche of King's College, London into how sight loss and dementia affects the lives of older people and their carers.

Thu, 07/20/2017 - 15:15

A longitudinal study of home care clients and their informal carers

The objective of the longitudinal study was to monitor physical and cognitive changes in a population of 330 older people being supported at home by health services. The participants were 75 years and older and classified as having moderate-to-high needs. A total of 210 primary informal carers were recruited to determine their specific needs and how they coped as dependency levels of their care-recipients changed. Data were collected using six different tools. Two questionnaires were mailed out to participating carers.

Thu, 07/20/2017 - 15:15

The Individual Budgets Pilot Projects: impact and outcomes for carers

This chapter sets out the policy and research contexts for the study. It first summarises the individual budget pilot projects and locates these within the wider context of policy initiatives aimed at giving disabled and older people greater choice and control over their support arrangements. It then summarises the somewhat separate development of policies and practice aimed at identifying and meeting the needs of informal and family carers.

Thu, 07/20/2017 - 15:15

A proper break: effective respite services for carers of people with dementia

Dementia is a diagnosed condition which is estimated to affect more than 750,000 people in the UK, and the numbers affected are increasing (AS, 2004). The majority of older people with dementia are cared for at home by a relative or friend. Caring for people with dementia is known to be physically and emotionally exhausting. Respite care aims to relieve carers of caring responsibilities in the short term, and offer a positive experience for the person being cared for.

Thu, 07/20/2017 - 15:15

Age old attitudes? Planning for retirement, means-testing, inheritance and informal care

An investigation of people's attitudes, understanding and expectations of their individual or collective rights and responsibilities in old age.

Thu, 07/20/2017 - 15:15

It's everybody's business: care and support for the 21st century

The Right Care, Right Deal coalition combines three of the UK's largest charities working with older people, their families and carers (Counsel and Care, Carers UK and Help the Aged) to urge the Government to renew its vision for the future of social care in England. (See Related Link for the consultation document: The case for change: why England needs a new care and support system, 2008). This campaign document outlines the main issues needed to be tackled in order for there to be 'a new, personalised and better funded deal for social care, fit for the 21st Century'.

Thu, 07/20/2017 - 15:15

Children and young people as active agents in care-giving: Agency and constraint

This paper envisions children and young people who provide informal care to family members with illness or disability as active agents within the care relationship, whilst emphasising that this agency operates within constraints. These constraints include familial and kinship obligations, socio-economic and demographic circumstances and policy and service constraints. This paper examines the costs incurred and benefits conferred by young people who provide care. It presents the findings from an analysis of Australian national data on young people who provide informal care.

Thu, 07/20/2017 - 15:15

Evaluating the effectiveness of service user and carer involvement in post qualifying mental health social work education in Scotland : challenges and opportunities

Purpose – The purpose of this study is to evaluate the effectiveness of user and carer involvement in a new one‐year postgraduate certificate course for Mental Health Officers (MHOs) in Scotland, covering the first year of its delivery (2009‐2010).

Thu, 07/20/2017 - 15:15

Managing the body work of home care

Body work is a key element of home healthcare. Recent restructuring of health and social care services means the home is increasingly a key site of long-term care. While there is a growing literature on the social dynamics between care recipients and their family caregivers, less is known about the formal work dynamic between paid care workers and care recipients and family caregivers.

Thu, 07/20/2017 - 15:15

Young carers' transitions into adulthood

This research looks at the experiences of 60 young people caring for an ill or disabled parent. It examines how young carers' move into adulthood and how their caring responsibilities affect this.

Thu, 07/20/2017 - 15:15

Page 87 of 133