Conducting a study to improve information exchange and develop communication strategies for informal carers of palliative care patients (and patients without carers): a team approach

The purpose of this paper is to report on research in progress. The research is being undertaken by the Sacred Heart Palliative Care Community Service (SHPCCS) multidisciplinary team on information and communication issues for carers of palliative care patients and patients without carers. The aim of the study is to explore the information needs of informal carers and patients without carers. A mixed methods, mixed methodology within a case study design has been use to conduct the study and the progress thus far has highlighted a number of challenges for the team. Data collection has consisted of interviews with health care professionals, carers and patients. An important component of the research process has been engaging clinical staff as participants in the learning process which has not only benefited them but contributed to the ownership and sustainability of the project. A multidisciplinary team is conducting the research under the supervision of a Steering Committee with representatives form nursing, m