CAREN logo

You are here

  1. Home
  2. Dementia in rural settings: examining the experiences of former partners in care

Dementia in rural settings: examining the experiences of former partners in care

Informal carers, also referred to as partners in care, provide the bulk of care to people living with dementia across a range of community settings; however, the changing experiences and contexts of providing informal care for people with dementia in rural settings are under-studied. Drawing on 27 semi-structured interviews with former partners in care in Southwestern and Northern Ontario, Canada, we examine experiences of providing and accessing care over the course of the condition and across various settings. Our findings illustrate the challenges associated with navigating the system of care, finding people who understand dementia in the surrounding community, negotiating hours of home support, facing resistance to respite from the person with dementia, and feeling pressured into long-term care. We argue that partners' time, bodies and choices are spatially constrained within rural and small-town settings and the current systems of home, community and long-term care.

Access source material through DOI

Key Information

Type of Reference
Jour
Type of Work
Journal article
Publisher
Cambridge University Press
ISBN/ISSN
0144-686X
Publication Year
2019
Issue Number
2
Journal Titles
Ageing & Society
Volume Number
39
Start Page
340
End Page
357