Skip to content

Toggle service links

You are here

  1. Home
  2. Tough transitions: Family caregiver experiences with a pediatric long-term ventilation discharge pathway

Tough transitions: Family caregiver experiences with a pediatric long-term ventilation discharge pathway

Objectives: Discharging a child home on long-term ventilation (LTV) via tracheostomy is complex and involves multiple healthcare providers across healthcare sectors. To date, there has been a paucity of data with respect to the experiences of families transitioning a child home on LTV. Our objective was to explore the perceptions of family caregivers (FCs) who have completed a newly developed LTV discharge pathway as they transitioned home. Methods: We conducted 11 semi-structured interviews with FCs. Interviews focused on FC's experience with the training process, perception of competency from a knowledge and skill perspective, and opportunities for improvement. Interviews were audiotaped, transcribed verbatim, coded, and analyzed using an inductive thematic analysis approach. Results: Eight mothers and three fathers of ten children participated. Six primary themes were identified: (1) making an informed decision, (2) transitioning to rehabilitation, (3) building capacity for self-care, (4) coordinating case management, (5) readying for discharge home, and (6) experiencing home care. Conclusion: Overall, FCs felt that the preparation and transition support obtained through the application of a standardized LTV discharge pathway allowed successful attainment of new knowledge and skills necessary to care for their child with LTV at home. 

Access source material through DOI
Original source (some source materials require subscription or permission to access)

Key Information

Type of Reference
Jour
Type of Work
Journal article
Publisher
Wiley
ISBN/ISSN
87556863
Publication Year
2021
Issue Number
10
Journal Titles
Pediatric Pulmonology
Volume Number
56
Start Page
3380
End Page
3388