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Experiences of Tourette Syndrome Caregivers With Supportive Communication

The experiences of Tourette syndrome (TS) caregivers with supportive communication are examined in this qualitative investigation. TS is a childhood-onset neurodevelopmental disorder marked by a combination of involuntary verbal and motor tics lasting for more than 1 year. Although individuals are impacted the most by TS, the stress for caring for a child with TS takes an emotional and physical toll on the caregiver. Eleven participants shared their experiences with receiving supportive communication by taking part in semi-structured interviews. Data analysis yielded three themes: (a) TS caregivers describe their experiences as a struggle; (b) they seek out specific social support from friends and families; and (c) they frequently receive social support that increases instead of reducing stress.

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Key Information

Type of Reference
Jour
Type of Work
Journal article
Publisher
Sage Publications
Publication Year
2020
Issue Number
10
Journal Titles
Qualitative Health Research
Volume Number
30
Start Page
1480
End Page
1490
Language
English