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Et, Al

Putting people first: a shared vision and commitment to the transformation of adult social care

Across Government, the shared ambition is to put people first through a radical reform of public services, enabling people to live their own lives as they wish, confident that services are of high quality, are safe and promote their own individual needs for independence, well-being and dignity.

Thu, 07/20/2017 - 15:22

Out-of-hours palliative care: a qualitative study of cancer patients, carers and professionals

Background: New out-of-hours healthcare services in the UK are intended to offer simple, convenient access and effective triage. They may be unsatisfactory for patients with complex needs, where continuity of care is important.

Aim: To explore the experiences and perceptions of out-of-hours care of patients with advanced cancer, and with their informal and professional carers.

Design of study: Qualitative, community-based study using in-depth interviews, focus groups and telephone interviews.

Thu, 07/20/2017 - 15:22

Educational needs of patients with a stroke and their caregivers: a systematic review of the literature

Objective: To systematically review the research on stroke patients’ and caregivers’ educational needs.

Methods: A search of the literature prior to and including the year January 2009 was conducted using Medline, CINAHL, EMBASE, PsychINFO and the Cochrane Library, yielding 959 articles. Of these, 21 studies were included in the review.

Thu, 07/20/2017 - 15:22

Impact on the individual: what do patients and carers gain, lose and expect from being involved in research?

Background: Study feasibility and deliverability can benefit from involving patients and carers in the research process, known as patient and public involvement (PPI). There is less evidence on the experiences of patients and carers themselves and we require more information across a range of studies, health conditions and research stages.

Aims: This study explored how patients and carers in eight diagnostic research specialties have been involved in research, their motivations and the impact involvement had on them.

Thu, 07/20/2017 - 15:22

User and carer involvement in social work education - a university case study: manipulation or citizen control?

This paper provides an account of one university's experience of involving service users and carers in the delivery of the new undergraduate and postgraduate social work degrees. It poses the question as to whether user and carer involvement in social work education can be viewed as a means of promoting citizen participation or whether it is a case of manipulating relatively powerless groups. In addressing this question, service users and carers and social work tutors describe, from their own distinct perspectives, the processes in which they were both involved.

Thu, 07/20/2017 - 15:21

'A brilliant think...just doing my own little bit'

Liveability is a NHS nurse-led service providing instructor-led exercise classes and gym sessions in Liverpool. The service collaborated with a European research project Innovate Dementia to increased access to Liveability for people living with dementia and to evaluate the benefits for those taking part in the programme. The evaluation found that involvement in the exercise programme brought many benefits for individuals with dementia and their carers. Core themes are discussed in relation to enjoyment and recreation and improved fitness and cognition.

Thu, 07/20/2017 - 15:21

Caring for people with eating disorders: factors associated with psychological distress and negative caregiving appraisals in carers of people with eating disorders

OBJECTIVES: Carers of people with eating disorders (ED) have high levels of distress, but little is known about the contributing factors. The aim of this study was to examine predictors of carers' distress and caregiving appraisals using a model of caregiving adapted from the previous literature.

DESIGN: A cross-sectional design was used.

Thu, 07/20/2017 - 15:21

Caregivers' relationship closeness with the person with dementia predicts both positive and negative outcomes for caregivers' physical health and psychological well-being

Closer relationships between caregivers and care recipients with dementia are associated with positive outcomes for care recipients, but it is unclear if closeness is a risk or protective factor for the health and psychological well-being of caregivers. We examined 234 care dyads from the population-based Cache County Dementia Progression Study. Caregivers included spouses (49%) and adult offspring (51%). Care recipients mostly had dementia of the Alzheimer's type (62%).

Thu, 07/20/2017 - 15:21

The carer's role in planning care for people with dementia

For the past 15 years a central theme of government health-care policy has been to encourage the health service to change the way it relates to those who use it. Recent health policy documents such as Our National Health: A plan for action, a plan for change (Scottish Executive, 2000) emphasise a more integrated way of working that reflects co-operative partnerships.

Thu, 07/20/2017 - 15:21

Support in the community for people with dementia and their carers: a comparative outcome study of specialist mental health service interventions

Background: This study aimed to evaluate outcomes for carers receiving the Admiral Nurse Service, a specialist mental health nursing service for carers of people with dementia. In contrast to many community mental health teams, it works primarily with the caregiver, focuses exclusively on dementia and offers continuing involvement, throughout the caregiving career, including emotional support, provision of information and coordination of practical support.

Thu, 07/20/2017 - 15:21

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