Social Care Institute For, Excellence

Having been diagnosed with dementia at the age of 70, Brian and his wife June now actively participate in planning dementia care services in Gloucestershire. The film illustrates the range of activities they are involved in - developing a 'Living Well Handbook', giving talks and helping shape training tools. It also highlights how commissioners, support organisations and carers all have a role to play in enabling the person with dementia to share their knowledge and experience for the benefit of others.

In this video we meet Jim and Janet Swift, both keen travellers until Janet was diagnosed with dementia at the age of 58. Jim's account of their experience illustrates the widespread effect of a very rapid deterioration, and explores the sense of loss and loneliness that can be part of the caring role. His account also highlights the need for skilled, experienced support for carers – in this case provided by an Admiral Nurse - together with access to regular breaks from the caring role.

This video looks at the practical arrangements that need to be made around accessibility, support and payments to ensure that users and carers can participate in social work education and be rewarded for their input. The film will be useful for social work students, lecturers, tutors, social worker educators, people working more broadly in co-production/participation and service users and carers.

The film provides an introduction to home care reablement. Reablement is a relatively new service aimed at supporting people to regain independence that may have been reduced or lost through illness or disability. The film focuses on the reablement service in the London Borough of Sutton, known as START (Short Term Assessment and Reablement Team), where we follow the experiences of two people using the service and hear from the manager and senior carer. We also hear from health economist Prof Julien Forder about new research evidence on the cost effectiveness of reablement.

This film focuses on Tim Anfilogoff, the Commissioner for Adult Services at Hertfordshire County Council. Hertfordshire has achieved Beacon status for its work with carers, and this film demonstrates how the council is working with carers, and listening to their experiences and feedback to ensure both the carers and the service users receive the best possible service. It features carer Mari Stevenson who talks about her personal experiences of caring for her daughter who is diabetic and has Down’s Syndrome.

Having been diagnosed with dementia at the age of 70, Brian and his wife June now actively participate in planning dementia care services in Gloucestershire. The film illustrates the range of activities they are involved in - developing a ‘Living Well Handbook’, giving talks and helping shape training tools. It also highlights how commissioners, support organisations and carers all have a role to play in enabling the person with dementia to share their knowledge and experience for the benefit of others.

This film focuses on the work of Nicola James, a social worker for Surrey County Council. Nicola works with disabled young adults and their carers. She introduces us to Caroline Hunter, who cares for her son, who is autistic and has severe learning disabilities. Nicola’s work with the Hunter family demonstrates how considering the needs of both the service user and the carer can have a positive impact on the whole family.

This film details the requirements on universities teaching the social work degree to involve service user and carers in their courses. It also sets out the benefits that result from students working with service users and carers, with users and carers describing how this leads to improved practice and how students explaining the value of learning about the realities of people's lives. The film will be of interest to social worker educators, students on social work courses, people working more broadly in co-production/participation and service users and carers.

This film focuses on Rose Fernandes who cares for her mother, who has dementia, and her daughter, who is autistic and has learning difficulties. She uses direct payments to pay for people to help with her daughter’s care, but for her mother she relies on agency staff. She finds this method tough as the agency staff only come at certain times, leaving her to care for her mum alone throughout the night. Meanwhile, her daughter Crystal receives much more flexible care, but direct payments leave her with a lot of paperwork to do. Note: This film is no longer available.

Key messages:

• Many older people see personal budgets as offering them more independence, as well as choice and control. The biggest concerns are managing the money and understanding what it can be spent on.

• Personal budgets can be held in several ways. Personal budget holders need clear information about what is involved – including risk and safety and help with assessment and planning. Knowledgeable staff are particularly important.