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Bristol University Press

Gender differences in research samples of family carers of adults with cancer: a systematic review

Background: Rising global demand for informal care makes it increasingly important to have a comprehensive understanding of carers’ experiences. However, research is thought to be skewed towards women’s experience, leading some to call men ‘forgotten carers’. Methods: A systematic review following Preferred Reporting Items for Systematic reviews and Meta-Analysis guidelines was conducted to assess the gender balance of study samples of family carers of someone living with cancer.

Wed, 08/03/2022 - 19:15

A qualitative investigation into family carers' experiences of living with/caring for a person with young-onset dementia

Background: Ageing is a significant risk factor for developing dementia; however, some people develop symptoms before the age of 65. Although less common, it is referred to as young-onset dementia. Estimating prevalence rates in Ireland is difficult, as there has been little study around what it is like to live with/care for this cohort; consequently, it is poorly understood. Methods: Nine primary carers were interviewed using semi-structured one-to-one interviews. Interview data were analysed with inductive thematic analysis.

Wed, 08/03/2022 - 17:32

A comparison of negative financial events experienced by carers and non-carers following onset of the Great Recession

Objectives and Methods: This study compares carers and non-carers as regards experiences of harmful financial events during and immediately after the Great Recession. Findings: Carer status was associated with experiencing more negative financial events since the Great Recession began, even after controlling for covariates in a negative binomial regression. Carers had higher odds of reporting: job loss; moving in with family and friends to save money; and selling possessions to make ends meet.

Wed, 08/03/2022 - 16:47

Digital transformation of care for older people

We are facing the 2050 aging wave that is calling us to prepare several strands of interventions to be ready on time. There is a need to foster the digital transformation of the care sector by the improvement of the digital literacy among older people, carers and care workers also using codesign approaches for the ICT usability and adoption in the social and health care domains. Moreover we need to switch from a reactive care model based on chronicity towards the adoption of a new one where citizens will be the co-maker of their own health.

Wed, 08/03/2022 - 16:02

'She misses the subtleties and I have to help - help to make the invisible visible': parents' role in supporting adults with intellectual and developmental disabilities with intimate relationships

Background: People with intellectual and developmental disabilities often need support to develop and maintain intimate relationships; however, little is known regarding the role of family carers in this area. Methods: Focus groups were conducted with 19 family members to explore the support they provide to people with intellectual and developmental disabilities to find a potential partner and any support they may have to provide to support/develop an existing relationship.

Fri, 07/29/2022 - 16:20

Life course partnership and employment trajectories and parental caregiving at age 55: prospective findings from a British Birth Cohort Study

We investigate whether work and partnership life courses between ages 16 and 54 predict the likelihood of providing care to a parent or parent-in-law at age 55, and whether these associations differ by gender or early life socio-economic circumstances. In the National Child Development Study (NCDS), fully adjusted models showed that strong life course ties to marriage were linked with a greater likelihood to provide parental care for both men and women.

Mon, 04/05/2021 - 17:54

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