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'She misses the subtleties and I have to help - help to make the invisible visible': parents' role in supporting adults with intellectual and developmental disabilities with intimate relationships

Background: People with intellectual and developmental disabilities often need support to develop and maintain intimate relationships; however, little is known regarding the role of family carers in this area. Methods: Focus groups were conducted with 19 family members to explore the support they provide to people with intellectual and developmental disabilities to find a potential partner and any support they may have to provide to support/develop an existing relationship. Findings: Family members provided similar support in this area as support staff, including both practical and emotional support. Conclusions: More needs to be done to support the family members providing this support, such as access to specialist resources and advice, as well as facilitated opportunities to discuss concerns.

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Key Information

Type of Reference
Jour
Type of Work
Journal article
Publisher
Bristol University Press
Publication Year
2021
Issue Number
3
Journal Titles
International Journal of Care and Caring
Volume Number
5
Start Page
489
End Page
507