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Taking Refuge in Spirituality, a Main Strategy of Parents of Children with Cancer: a Qualitative Study

Background: Due to the rise in prevalence of childhood cancer the impact on family caregivers is increasing.
Spirituality may be an alleviating factor for improving the quality of parent life. There is a lack of organized spiritual
care in health care facilities, so that this aspect needs more emphasis. Thus this study aimed to evaluate the spiritual
strategy of parents of children with cancer. Materials: This qualitative study was conducted with a conventional content

Mon, 11/14/2022 - 10:40

Rehabilitation services lockdown during the COVID-19 emergency: the mental health response of caregivers of children with neurodevelopmental disabilities

Background: The present study investigated the impact of the COVID-19-related rehabilitation services lockdown on the mental health of caregivers of children with neurodevelopmental disabilities. Methods: Between 26 March and 11 May 2020, 84 caregivers filled out ad-hoc and standardized questionnaires through an online survey in order to measure their psychological response to the emergency and lockdown as well as their levels of parenting stress, anxiety and depression.

Wed, 08/10/2022 - 19:23

Peer support interventions for parents and carers of children with complex needs

Background: Parents and family carers of children with complex needs experience a high level of pressure to meet children's needs while maintaining family functioning and, as a consequence, often experience reduced well-being and elevated psychological distress. Peer support interventions are intended to improve parent and carer well-being by enhancing the social support available to them. Support may be delivered via peer mentoring or through support groups (peer or facilitator led).

Wed, 08/10/2022 - 14:33

‘How to cope with stress?’ Determinants of coping strategies used by parents raising children with intellectual disabilities, other developmental disorders and typically developing children. A cross-sectional study from Poland

Introduction: Constructive coping strategies play an important role during childcare processes. We examined the determinants of coping strategies used by parents raising children with intellectual disabilities or other developmental disorders and by parents with typically developing children. Methods: The cross-sectional study was carried out in Cracow. The participants in the survey were 507 caregivers. The research used the Mini-COPE Inventory for Measurement-Coping with Stress and the General Self-Efficacy Scale.

Wed, 08/03/2022 - 15:54

'She misses the subtleties and I have to help - help to make the invisible visible': parents' role in supporting adults with intellectual and developmental disabilities with intimate relationships

Background: People with intellectual and developmental disabilities often need support to develop and maintain intimate relationships; however, little is known regarding the role of family carers in this area. Methods: Focus groups were conducted with 19 family members to explore the support they provide to people with intellectual and developmental disabilities to find a potential partner and any support they may have to provide to support/develop an existing relationship.

Fri, 07/29/2022 - 16:20

What are the shared decision‐making experiences of adult children in regard to their parent/s' health care in residential aged care facilities?

Aim: This scoping literature review aimed to answer the question: What are the shared decision‐making experiences of adult children in regard to their parent/s' health care in residential aged care facilities? Background: Shared decision‐making has been an important patient‐centred approach to nursing care since the 1990s, yet it is becoming increasingly evident that it is still not the reality in aged care facilities fifty years on.

Mon, 07/25/2022 - 17:49

Treatment Decision Making and Regret in Parents of Children With Incurable Cancer

Background: The treatment-related decision-making process is a highly emotional time for parents of children with incurable cancer, and they tend to continue the cancer-directed treatment even when they realize that there is no cure for their child. Objective: To evaluate whether parents involved in different treatment decisions regretted their treatment decision after their child's death. Methods: We collected prospective data from 418 parents of children who died of incurable cancer after receiving cancer care at 1 of 4 hospitals.

Fri, 07/15/2022 - 20:19

Relationship Between Quality of Life of Children With Cancer and Caregiving Competence of Main Family Caregivers

Objective: The purpose of this study was to describe the caregiver's proxy-report of the quality of life (QoL) of children with cancer and the main family caregiver's competence, and to examine the role of said competence and other care-related variables in their proxy-reported QoL of children with cancer. Method: This was a cross sectional, correlation design study conducted with 97 main family caregivers of children between the ages of 8 and 12 years with cancer residing in Colombia.

Sat, 06/18/2022 - 11:53

Quality of Life in Caregivers of Children and Adolescents with Autistic Spectrum Disorder: Development and Validation of the Questionnaire

Background: Studies have shown that children and adolescents with autism and their relatives present a high level of stress and more family problems, impacting parents’ and caregivers’ quality of life (QoL). Despite studies on this subject, there is no specific questionnaire to evaluate QoL in parents or caregivers of children and adolescents with an autistic spectrum disorder (ASD) in Brazil. Therefore, this study’s primary purpose was to develop and validate a specific questionnaire to evaluate QoL in these individuals.

Thu, 06/16/2022 - 20:10

Parents' and caregivers' satisfaction with community‐based rehabilitation (CBR) services for children with disability in east coast states in Peninsular Malaysia

Background: The Community‐Based Rehabilitation (CBR) services under the Malaysian Ministry of Women, Family and Community Development have provided two types of services for disabled children: centre‐based and home‐based care since 1984. Methods: A cross‐sectional study was conducted among parents and caregivers with children receiving treatment at CBRs on the east coast of Peninsular Malaysia, to determine the level of satisfaction with the services provided. Respondents were recruited via multi‐staged sampling, and simple randomisation at CBR level.

Fri, 06/10/2022 - 11:53

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