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Demystifying autism and Asperger's syndrome: help for parents, carers, teachers and others interested in autistic spectrum disorder

Better diagnosis has played a key role in identifying the children and adults with autistic spectrum disorder. Current figures estimate that 500,000 families throughout the UK are affected. And because autism is a spectrum disorder, it affects people at differing levels of cognitive functioning with three distinct areas of impairment.

Thu, 07/20/2017 - 15:10

“I Can’t Go to School and Leave Her in So Much Pain”: Educational Shortfalls Among Adolescent ‘Young Carers’ in the South African AIDS Epidemic

“I go to the hospital with my mother when she is sick. I can’t go to school and leave her in so much pain. I won’t concentrate.” Millions of adolescents live with AIDS-affected parents or primary caregivers. Little is known about educational impacts of living in an AIDS-affected home, or of acting as a “young carer” in the context of AIDS. This study combined qualitative and quantitative methods to determine educational impacts of household AIDS-sickness and other-sickness.

Thu, 07/20/2017 - 15:10

The right to leave

While the regulations allowing staff parental leave are quite specific, those governing other caring responsibilities are less clear. [Introduction]

Thu, 07/20/2017 - 15:09

Understanding the impact of an Assertive Outreach Team on couples caring for adult children with psychosis

Carers play an essential role in the lives of people suffering from mental health problems. Caring is very often a relational activity carried out by family members. Assertive Outreach (AO) services ought to be particularly well placed to support carers, but their impact upon families is not well understood. We set out to understand the intervention of AO services from a family perspective, and in particular to explore its meaning from the perspectives of pairs of carers. Three pairs of carer-parents participated in six individual open-ended interviews.

Thu, 07/20/2017 - 15:09

Caring for mum and dad: lesbian women negotiating family and navigating care

This article reports on findings from a qualitative study that explored the experiences of twenty-one gay men and lesbian women who care, or cared, for a person with dementia in England. The aim of the study was to explore how a person's gay or lesbian sexuality might impact upon their experience of providing care in this context. Analysis of the data identified a number of consistent themes—carers' experiences of the early signs and symptoms of dementia, of receiving the diagnosis, becoming a carer and their hopes and fears for the future in light of their care-giving experiences.

Thu, 07/20/2017 - 15:09

Young carers of parent with mental health issues

In 2009, The Social Care Institute for Excellence introduced guidelines for practitioners to support families in which parents have mental health problems. Here, SCIE presents a case study demonstrating how the guidance could be successfully applied. 

Thu, 07/20/2017 - 15:09

'He will finish up caring for me' : people with learning disabilities and mutual care

Until recently, the carer's perspective has dominated research on families who include someone with a learning disability and recent legislation has underlined the carer's rights. Previous research has found that some more able people with learning disabilities were very aware of their parents' growing needs, and were taking on responsibilities within the family to help and support their carer/parents. However, recent legislation still dichotomizes family members into carers and cared-for people.

Thu, 07/20/2017 - 15:08

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