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Parents’ views on preparation to care for extremely premature infants at home

Aim: To gain insight into the post-discharge experiences of parents in relation to the adequacy of preparation for caring for extremely premature infants at home.

Method: A narrative approach was drawn on to facilitate data collection, through face-to-face semi-structured interviews with 14 parents of extremely premature infants.

Wed, 01/11/2023 - 16:01

Parents’ decision-making about attending an emergency department with their child

There is a possibility that front-line services, particularly out-of-hours services, are not accessible to some parents. The aim of this service evaluation was to gain a better understanding about visits to one emergency department (ED) in the south of England by children and their parents or carers. The specific focus was to elucidate the reasons behind frequent ED attendance and indicate a potential redesign of services.Semi-structured interviews were conducted with 13 parents.

Tue, 01/10/2023 - 16:26

Effects of a mindfulness-based stress reduction group programme on family carers

Background: Mindfulness-based stress reduction (MBSR) is an evidence-based intervention that teaches participants skills in reducing stress and managing challenging emotions in a group setting. Mindfulness-based therapies have demonstrated effectiveness in various populations, and therefore may be beneficial for family carers. Aim: To deliver and appraise a pilot MBSR group programme for family carers of adults and children with a mental health condition, physical health condition or learning disability.

Thu, 12/29/2022 - 12:06

The psychological effects of caring for a family member with dementia

Background: Informal caregivers have a vital role in supporting and caring for family members with dementia. Caregiving is complex and may lead to psychological, physical, social and financial stress for caregivers. Methods: This article reports the findings of an integrative review that explored the literature on the psychological effect of caring for a family member with dementia at home.

Tue, 08/30/2022 - 19:59

Setting up an advisory group to explore the role of partners of adolescents and young adults in cancer care

Minimal research has been undertaken into needs of partners of adolescents and young adults with cancer. However, it is understood to be important for adolescents and young adults with cancer to maintain a connection with healthy peers and that they regard their loved ones, including partners, as valuable to them during their cancer treatment. Research has also suggested that adolescents and young adults consider that loved ones and partners also need support and that this support is lacking in cancer services.

Tue, 06/21/2022 - 19:33

Supporting family carers via the Admiral Nurse Dementia Helpline: reflection on a case study

In the UK, the quality of post-diagnostic care and support for people with dementia and their family carers is variable and depends on the availability of services in each person's local area. This article considers the support services available for families affected by dementia and discusses how telephone helplines can assist those who may have no access to other types of support. It presents a case study describing a call to the Admiral Nurse Dementia Helpline, a service run by nurses with expertise in dementia care and provided by the charity Dementia UK.

Thu, 01/14/2021 - 09:46

What is an older husband's experience of caring for his wife who has dementia?

A significant number of informal carers look after people who have dementia. Women's caring experiences are well documented. However, a substantially smaller amount of research exists specifically investigating the male carer perspective. This literature review explores older husbands' experiences of caring for their wives who have dementia. The findings suggest that husbands are committed to their caring role but can feel socially isolated. The caring role of older men has altered the dynamic in the marriage.

Mon, 02/03/2020 - 17:57

Prisoner peer caregiving: a literature review

AIM: To explore the role of prisoner caregivers in providing peer social care to older prisoners and to identify methodological information and challenges to conducting research in prisons, to inform future research in this setting. METHOD: The literature review was conducted in two stages. In the first stage, a systematic literature review was undertaken to retrieve articles related to prisoner caregiving. The main themes from these articles were identified.

Wed, 05/15/2019 - 09:50

Meeting the needs of carers of people at the end of life

Carers have a vital role in end of life care in all settings. They are essential in enabling people to live at home at the end of their lives. Carers give and receive care, and have a range of support needs related to this complex role. This article explores the context of caring at the end of life and considers the experience of carers, in particular those who have a non-professional and unpaid relationship with someone who is at the end of life, and the support they require.

Mon, 04/01/2019 - 12:54

Staff experiences of double-duty caring: at home and at work

Many healthcare, social care and voluntary agency employees are carers at work and at home, a phenomenon referred to as double-duty caregiving. Using meta-ethnography, this article provides a synthesis of qualitative research by analysing the original words of the interviewees. A linguistic and metaphoric overview provides a deeper, richer picture of the experience of double-duty caring, revealing the sacrifices associated with being a carer at home while employed in a healthcare system, and the paradoxical effects of holding a position in both worlds simultaneously.

Sun, 03/31/2019 - 17:04

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