Setting up an advisory group to explore the role of partners of adolescents and young adults in cancer care

Minimal research has been undertaken into needs of partners of adolescents and young adults with cancer. However, it is understood to be important for adolescents and young adults with cancer to maintain a connection with healthy peers and that they regard their loved ones, including partners, as valuable to them during their cancer treatment. Research has also suggested that adolescents and young adults consider that loved ones and partners also need support and that this support is lacking in cancer services. A recent research project by the first author (JD) examined the experience and role of partners in meeting the support needs of adolescents and young adults with cancer. A vital aspect of the project was the use of patient and public involvement in the development of a young adult advisory group – consisting of couples where one person in the relationship had been treated for cancer – to inform all aspects of the research. This article provides a brief summary of the completed research, and describes the development and work of the advisory group.