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Relational counselling as a psychosocial intervention for dementia: Qualitative evidence from people living with dementia and family members

Background: Counselling and other psychotherapeutic interventions can be offered to people with dementia and their caregivers, to treat specific conditions or symptoms (e.g. affective disorders such as depression). Psychotherapeutic interventions also offer the opportunity for individuals with dementia and their families/caregivers to engage in psychological support for a wide range of presentations. However, little is known about how those within this demographic who receive these interventions perceive the experience.

Sat, 06/18/2022 - 11:46

A qualitative exploration of family carer's understandings of people with dementia's expectations for the future

Background: There is little evidence that outlines how family carers understand the person with dementia's perspective, values and anticipated future needs. Whilst people with dementia should be consulted about their own quality of life and care values, carers – otherwise known as care partners – require such understandings to ensure that the support the person receives into the future upholds their quality of life and is consistent with what they desire.

Mon, 06/13/2022 - 14:03

Psychological Distress and Social Support Availability in Different Family Caregivers of Latinas With Breast Cancer

Background: Latinas with breast cancer draw on a diverse range of family members for informal care. Latin cultures typically prescribe high levels of support and care for an ill family member that leave caregivers vulnerable to compromised well-being. Method: In this cross-sectional survey study, 258 family caregivers of Latinas with breast cancer completed reports of psychological distress, availability of social support, and acculturation.

Mon, 06/13/2022 - 11:20

Psychoeducational Program for the Family Member Caregivers of People with Dementia to Reduce Perceived Burden and Increase Patient's Quality of Life: A Randomized Controlled Trial

Background: Dementia is one of the world's greatest public health issues. Most people with dementia receive home care, and family members are vulnerable to feeling burdened and depressed that reinforces the need for caregiver-driven services to mitigate these negative effects. Objective: The purpose of this research was to evaluate the effect of the psychoeducational program on burden and quality of life of family caregivers for people with dementia. Methods: This randomized controlled trial (RCT) was conducted on 60 family caregivers.

Mon, 06/13/2022 - 10:55

Prioritizing Family Caregiving Research Across Diverse Settings to Support Our Aging Society

An editorial is presented on the Prioritizing Family Caregiving Research Across Diverse Settings to Support Aging Society. The article discusses that this has become abundantly clear during the evolving COVID-19 pandemic as family caregivers took on increasing responsibility for care amid the most challenging of circumstances; and research must not only continue but must also grow to better demonstrate how we can effectively support caregivers.

Sun, 06/12/2022 - 21:28

Predictors of Family Caregiver Burden in Shanghai

Background: This study explored predictors of family caregiver burden against the backdrop of the rapidly aging population and gradually weakening family care in urban China. Methods: It used a unique sample from the 2017 survey on older adults with functional disability and their family caregivers in Shanghai, China. A multi-pronged approach and ordinary least squares (OLS) regression were employed to identify predictors of family caregiver burden. Results: Statistical analysis revealed that approximately 25% of caregivers felt stressed.

Sun, 06/12/2022 - 16:12

Partnerships in nursing homes: How do family caregivers of residents with dementia perceive collaboration with staff?

Background: Partnerships between family and nursing staff in nursing homes are essential to address residents' needs and wishes. Collaboration is needed to create partnerships; nonetheless, challenges exist. Aim: This study aimed to gain insights into the experiences of families collaborating with staff. Method: Semi-structured interviews were held with 30 family caregivers of nursing home residents with dementia.

Fri, 06/10/2022 - 12:16

Parent–Child Relationship Quality as a Mediator of the Association between Perceived Stress and Diabetes Self-Management in Adolescents With Type 1 Diabetes

Background: Diabetes self-management is suboptimal in adolescents with type 1 diabetes (T1D), including those in China. Objectives: The aim of the study was to investigate the impact of parent–child relationship quality on diabetes self-management. Data were collected by a self-report survey among 122 Chinese adolescents from April to July 2017. The data were analyzed using a one-way analysis of variance, descriptive analyses, correlation analyses, and mediation analyses.

Fri, 06/10/2022 - 11:47

Parental Feeding Concerns for Children With Autism Spectrum Disorder: A Family-Centered Analysis

Background: This study identifies and describes feeding concerns of parents of children with autism spectrum disorder (ASD) and examines the extent to which parents relate those concerns as having been addressed by therapists. Methods: Survey data were collected from 113 parents of children with ASD. Results: Of the parents surveyed, 68% described a past or present concern with feeding; 60% of those parents with concerns said a therapist had not addressed those concerns.

Fri, 06/10/2022 - 11:27

Overcoming Challenges to Surrogate Decision Making for Young Adults at the End of Life

Surrogate decision makers (SDMs) are challenged by difficult decisions at the end of life. This becomes more complex in young adult patients when parents are frequently the SDMs. This age group (18 to 39 years old) commonly lacks advanced directives to provide guidance which results in increased moral distress during end of life decisions. Multiple factors help guide medical decision making throughout a patient's disease course and at the end of life. These include personal patient factors and SDM factors.

Fri, 06/10/2022 - 10:44

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