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Wolters Kluwer

Moderator Role of Mutuality on the Association Between Depression and Quality of Life in Stroke Survivor-Caregiver Dyads

Background: Authors of previous research have not yet analyzed the role of potential moderators in the relationship between depressive symptoms and quality of life (QOL). Aims: The aim of this study was to examine the moderating effect of mutuality between depressive symptoms and QOL in stroke survivor and caregiver dyads. Methods: This study used a longitudinal design with 222 stroke survivor-caregiver dyads enrolled at survivor discharge from rehabilitation hospitals. Data collection was performed for 12 months.

Wed, 06/08/2022 - 17:20

The issue of Caregiver Exclusion During the COViD-19 Pandemic With Christine Alewine, MD, PHD, of the National Cancer Institute

When the United States was in the early throes of the COVID-19 pandemic, hospitals and health care centers took many steps to decrease risk of COVID-19 transmission for patients who needed health care unrelated to the new coronavirus. The medical community largely cut off visitor access in hospitals and care centers, also cutting off access for friends and family members of patients who act as primary caregivers and play a critical role in communication of health information and continuity of care for patients.

Mon, 06/06/2022 - 22:59

The Interaction Between Hematological Cancer Patients and Family Caregivers and Their Life Changes

Background: Diagnosis of hematological cancer affects patients and caregivers as a unit. Few studies have focused on the relationship between hematological cancer patients and their caregivers. Objective: To explore (a) the interaction between patients receiving treatment for hematological cancer in a hematology-oncology clinic and their family caregivers and (b) perceived changes in lives of patients receiving treatment for hematological cancer in a hematology-oncology clinic and their family caregivers.

Mon, 06/06/2022 - 18:57

Informational Gaps, Needs, and Preferences of Adults With Chronic Health Conditions and Their Family Caregivers

Objectives: The purpose of this cross-sectional, qualitative study was to determine unmet educational needs, preferences, and barriers experienced by individuals with chronic illness and their caregivers. Methods: A survey containing fixed-choice selections and open-ended questions was sent to persons with cancer and other chronic diseases who had been seen within a large national private health system.

Mon, 06/06/2022 - 16:14

Importance of Day-Care Centers in Dementia Care: A case Study From India

The caregivers of persons living with dementia (PLwD) have to provide full-time caregiving to the individual, in addition to other responsibilities in their own life. Providing care to a PLwD affects their quality of life and mental health. In such a context, clinicians have to guide caregivers in decreasing caregiver's burden through appropriate referrals. Day-care centers can be one such service, which is illustrated with the support of a case here.

Sun, 06/05/2022 - 18:48

Gaining Experience Over Time: The Family Caregivers' Perception of Patients with a Tracheostomy in Home Care

Background: The transition of tracheostomy patients to the home poses many challenges for both the patient and the family. Identifying and understanding the experiences of family caregivers pave the road for discovering and meeting care needs. This study has been aimed to explain the experiences of family caregivers of patients with a tracheostomy about patient care at home. Materials and Methods: This qualitative study was conducted using a conventional content analysis approach from September 2018 to January 2019.

Wed, 06/01/2022 - 13:46

From the Other Side of the Bed: Lived Experiences of Registered Nurses as Family Caregivers

Background: To provide patient- and family-centered care, health care providers must understand the caregiver experience. Evidence suggests that registered nurses functioning as family caregivers (RNFCs) may have unique experiences and challenges. Purpose: The purpose of this study was to explore the lived experiences of RNFCs during an adult family member's episode of care in the southern United States. Methods: A descriptive phenomenological approach was used to describe the essence of the RNFC experience throughout an episode of care.

Wed, 06/01/2022 - 13:05

Feasibility of an Intervention Study to Support Families When Their Loved One Has Life-sustaining Therapy Withdrawn

Background: This investigation addressed family member perceptions of preparation for withdrawal of life-sustaining treatment in the intensive care unit. These families are at a high risk for psychosocial and physical sequelae. Methods: The quantitative results of this mixed methods study are reported. A control group received usual care and an educational booklet component of the intervention. The experimental group received the above plus exposure to comfort cart items and additional psychological support.

Mon, 05/30/2022 - 18:41

Family-oriented interventions in long-term care residential settings: a scoping review protocol

Objectives: The objective of this review will be to identify the characteristics (eg, type, duration, and provider) of family-oriented interventions in long-term care residential settings. The authors will also identify which outcomes are reported in the literature when implementing family-oriented interventions. Introduction: An array of family-oriented interventions in long-term care residential settings exist.

Mon, 05/30/2022 - 18:22