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Wolters Kluwer

When Family Caregivers Meet Health Care Institutions

Nurses have the opportunity to make a difference for caregivers.

Fri, 08/05/2022 - 20:27

Using a Mechanical Lift at Home

The article is part of a series, which supporting Family Caregivers, and published in collaboration with the AARP Public Policy Institute. Topics discussed include results of focus groups, conducted as part of the AARP Public Policy Institute's No Longer Home Alone video project, supported evidence that family caregivers; and this series of articles and accompanying videos aims to help nurses provide caregivers with the tools they need to manage their family member's health care at home.

Thu, 07/21/2022 - 15:59

Treatment Decision Making and Regret in Parents of Children With Incurable Cancer

Background: The treatment-related decision-making process is a highly emotional time for parents of children with incurable cancer, and they tend to continue the cancer-directed treatment even when they realize that there is no cure for their child. Objective: To evaluate whether parents involved in different treatment decisions regretted their treatment decision after their child's death. Methods: We collected prospective data from 418 parents of children who died of incurable cancer after receiving cancer care at 1 of 4 hospitals.

Fri, 07/15/2022 - 20:19

Revealing the Invisible Emotion Work of Caregivers: A Photovoice Exploration of Informal Care Provided by Family Caregivers for Post-9/11 Veterans With Traumatic Brain Injuries

Objective: Describe the different forms of emotion work performed by family caregivers of veterans living with a traumatic brain injury (TBI). Design: Collaborators were provided cameras to take photographs illustrating their experiences as family caregivers. The meaning behind caregiver photographs was solicited using photoelicitation interviews and coded.

Sat, 06/18/2022 - 14:56

Pressure Injury Prevention Knowledge Among Family Caregivers of Patients Needing Home Care

Background: One of the complications that patients in need of home healthcare might experience is pressure injury. Given that a significant part of the care of these patients is performed by their family caregivers, they must have sufficient knowledge about prevention and treatment of pressure injuries. Methods: We investigated the knowledge related to pressure injuries among family caregivers of patients needing home care who were at risk of pressure injury.

Sun, 06/12/2022 - 18:03

The Role of Beliefs and Psychological Factors in Caring of Patients With Cancer

Background: Cancer affects not only the patient but also family members as informal caregivers. In order for family caregivers to achieve balance and improve their caregiving roles, it is essential to identify the beliefs and psychological aspects affecting them. Methods: The present study was carried out qualitatively with a descriptive phenomenological design in 2020. The main participants in this study were selected from one of the major referral centers for cancer patients in West Azerbaijan Province, located in northwestern, Iran.

Thu, 06/09/2022 - 19:53

The Road to Family Resiliency: A Case Report of a Family's Experiences Following Adolescent Stroke

Purpose: This study generated an understanding of familial resiliency following an adolescent's stroke and what resiliency-related outcomes were important to this family. Design and Methods: A qualitative case study design was used to collect data during an in-person interview. The interview was transcribed verbatim and analyzed using thematic analysis.

Thu, 06/09/2022 - 19:35

Oral Care Experiences of Palliative Care Patients, Their Relatives, and Health Care Professionals: A Qualitative Study

Background: Oral symptoms in a growing number of palliative care patients are often neglected. Dental professionals are not always involved in palliative care. Oral care is often inadequately delivered to palliative care patients, while oral problems can affect the quality of life. Methods: A qualitative study was conducted to explore oral care experiences of palliative care patients, their relatives, and health care professionals (HCPs). Four patients, 4 relatives, and 4 HCPs were interviewed in a hospice.

Thu, 06/09/2022 - 15:42

Older Caregivers With HIV: An Unrecognized Gap in the Literature

Background: Although the number of older people living with HIV (PLWH) is growing, prior research has focused on older PLWH as care recipients and psychosocial factors (e.g., stigma, social support) associated with their HIV care. Literature on HIV caregiving mainly focuses on family members providing care to PLWH or children of parents with HIV. There is a gap in the literature in terms of older PLWH's roles as caregivers to their family members.

Thu, 06/09/2022 - 13:11

The Mutual Effects of Perceived Spiritual Needs on Quality of Life in Patients with Advanced Cancer and Family Caregivers

Background: Perceived spiritual needs may increase when patients with advanced cancer and their family caregivers are confronted with the challenges of physical and psychological distress. Given the intertwined relationships between patients and family caregivers, their interdependence should be considered to understand how perceived spiritual needs affect the quality of life of their own and of their partner.

Wed, 06/08/2022 - 21:16