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Parents' Experiences of Two Different Approaches to Diabetes Care in Children Newly Diagnosed With Type 1 Diabetes

Various care approaches are provided to support families with newly diagnosed children in their task of diabetes management. We conducted qualitative interviews with 36 parents of 23 children, newly diagnosed with type 1 diabetes. The parents were recruited from participants in a Randomized Controlled Trial (RCT) evaluating hospital-based care (HBC) and hospital-based home care (HBHC), to explore their experiences of two different approaches to diabetes care. The HBC was considered as being safe but not family- or diabetes-oriented.

Thu, 01/05/2023 - 14:54

Associations Between Parenting Stress, Language Comprehension, and Inhibitory Control in Children With Hearing Loss

Purpose: Parenting stress has been studied as a potential predictor of developmental outcomes in children with normal hearing and children who are deaf and hard of hearing. However, it is unclear how parenting stress might underlie at-risk spoken language and neurocognitive outcomes in this clinical pediatric population. We investigated parenting stress levels and the shared relations between parenting stress, language comprehension, and inhibitory control skills in children with and without hearing loss (HL) using a crosssectional design.

Thu, 01/05/2023 - 12:38

Empowerment of informal caregivers in mental health in childhood: validation of the Italian - Family Empowerment Scale (I-FES)

Aim: The Family Empowerment Scale (FES) is a tool, constituted by three subscales (family, services and community), which allows to have a picture of the state of empowerment of informal caregivers (IC) of minors with neurodevelopment disorder. The aim of this study is to present the transcultural validation of the Italian version, the Italian-Family Empowerment Scale (I-FES).

Thu, 01/05/2023 - 12:28

Hope for the Future But Fear the Risk of Stigma: Ethiopian Family Caregivers' Lived Experience of Caring for Their HIV Positive Child Two Years After Starting Antiretroviral Treatment

Family caregivers are believed to be the primary source of support for HIV-affected children. There is limited evidence about practices of support for caregivers, to strengthen them and to enhance the welfare of HIV positive children, especially in African settings. Our aim was therefore to illuminate caregivers' lived experiences of caring for a child in Ethiopia 2 years after the child was enrolled in antiretroviral therapy.

Thu, 01/05/2023 - 12:19

Respite Care for Families of Children with Disabilities: A University/Faith Community Model

Families of children with disabilities or special healthcare needs report respite care as a great need, yet availability of such care is scarce. A partnership developed between a nursing school in the Southeast and a faith community, to provide respite care and summer camps, resulted in a win-win situation for families, children, interprofessional students and educators, the faith community, and volunteers. This article explains the need for respite, how schools of nursing and faith communities can partner, and the benefits to all stakeholders.

Thu, 01/05/2023 - 12:15

Prevalence of Depression among Caregivers of Indian Children with Cystic Fibrosis

Objective: To study the prevalence of depression among caregivers of children with cystic fibrosis and its impact on the health and well being of these children. Methods: This cross-sectional study was conducted in a tertiary care hospital from September 2015 through August 2016. Forty one parents of children receiving treatment at the Cystic fibrosis (CF) clinic were approached to be part of the study. Six families declined the request resulting in 85% recruitment rate.

Thu, 01/05/2023 - 12:01

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