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Nurse-led brief sleep education intervention aimed at parents of school-aged children with neurodevelopmental and mental health disorders: Results from a pilot study

Purpose: To test the effects of a single-session parent sleep educational intervention, led by a pediatric nurse, on sleep in a group of school-aged children attending a National Health Service mental health clinic in Murcia, Spain. Design and Methods: Parents/caregivers of 26 children (mean age = 8.58 years; standard deviation = 0.58; 80.8% male) with neurodevelopmental or mental health disorders (84.6% pervasive developmental disorder), and with a suspicion of a behavioral sleep problem, participated in a 45-min group educational session about healt

Sun, 01/01/2023 - 14:41

Our life at home: Photos from families inform discharge planning for medically complex children

Background: Infants with medical complexity are increasingly cared for at home, creating unique challenges for their caregivers. The sickest of these are those with chronic critical illness (CCI). These infants’ medical fragility and resource‐intensive needs puts them at increased risk for suboptimal transitions from hospital‐ to home‐based care. It is unclear whether, and if so, to what extent clinicians gather and use knowledge of a family's home context during discharge planning.

Sun, 01/01/2023 - 14:22

Experience of associative stigma in parents of adolescents at risk for psychosis

Aim: This qualitative study examined the lived experience of associative stigma for parents of adolescents at clinical high risk for psychosis. A central goal was to empower families to tell their stories and to use the themes that emerge from this narrative data to make recommendations that might support families coping with a loved one being diagnosed with risk for psychosis. Methods: Twelve parents of adolescents diagnosed with the clinical high risk for psychosis syndrome were interviewed using a semi‐structured approach.

Sun, 01/01/2023 - 14:16

Caregiver Attendance as a Quality Indicator in the Implementation of Multiple Evidence-Based Practices for Children

Objective: This study investigated a quality indicator for children's mental health, caregiver attendance in youth psychotherapy sessions, within a system-driven implementation of multiple evidence-based practices (EBPs) in children's community mental health services. Method: Administrative claims from nine fiscal years were analyzed to characterize and predict caregiver attendance. Data included characteristics of therapists ( n = 8,626), youth clients ( n = 134,368), sessions (e.g., individual, family), and the EBP delivered.

Sun, 01/01/2023 - 14:11

Resilience, life satisfaction, care burden and social support of mothers with a child with acute lymphoblastic leukaemia: a comparative study

Background: The study aimed to make comparison between the resilience, life satisfaction, care burden and social support of mothers with a child with acute lymphoblastic leukaemia (ALL) and those with a healthy child. Methods: The study was carried out using the comparative and descriptive methods, and the study group included mothers with ALL children hospitalised in the Paediatric Haematology Clinic of a university hospital (n = 51) and those with healthy children who applied to a family health centre (n = 53).

Sun, 01/01/2023 - 13:59

Few hospitals dedicate space for family caregivers, but that could change

The article calls on hospitals to dedicate a space for family caregivers to relieve them from stress and loneliness when a family member is hospitalized. Burke Rehabilitation Hospital in White Plains, New York established the first caregiver resource center inside a rehab hospital. Several factors were cited by caregiver advocates that will convince hospitals to create caregiver centers, including the addition of penalties under the Affordable Care Act for avoidable readmissions.

Sun, 01/01/2023 - 13:45

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